i was diagnosed with CFS in the 80's, turned out to be Hep-C...
Posted on 08/20/2016 10:06:55 PM PDT by Seizethecarp
In response to requests by U.S. patient organizations and advocates, the U.S. Agency for Healthcare Research and Quality (AHRQ) has issued an Addendum to its 2014 ME/CFS evidence review. This Addendum downgrades the conclusions on the effectiveness of cognitive behavioral therapy (CBT) and graded exercise therapy (GET), and this has tremendous implications for medical education and treatment recommendations. GET is Ineffective for ME Patients. CBT Is Barely Effective.
(Excerpt) Read more at occupyme.net ...
Finally, it is now announced that when when prior studies was properly reviewed CBT and GET either had NO benfits for ME/CFS patients or actually HURT THEM. This was most likely because GET exercise inflames the immune system in these patients and CBT is simple common-sense talk therapy! I completed CBT at considerable time and expense to my employer who was self-insured for my ME/CFS long-term disability. I was unable to attempt GET due to my ME/CFS.
In the UK thousands of ME/CFS patients were dumped from disability roles for failing to comply with or complete these "exercise" programs that were hurting them because one ruthless senior psychiatrist in the UK government wouldn't admit he was wrong!
Link to Evidence Addendum Report:
https://effectivehealthcare.ahrq.gov/ehc/products/586/2004/chronic-fatigue-report-160728.pdf
i was diagnosed with CFS in the 80's, turned out to be Hep-C...
After my injury, I was sent to a psych for pulsatile Tinnitus (a wholly non psychological symptom), insomnia up to 44 hours at a time (VERY common after head injury and not psychological) and pain and headaches.
Didn’t do a DROP of help.
Some of the symptoms got a little better over the years.
I live with the rest. It is what it is.
I think 100 years from now they will call our psychological treatment system barbaric. It’ more a vast lack of knowledge about the brain and pompous doctors and pharmaceutical companie that like to sell garbage.
why is medicine and science so backward thinking? It seems it’s just a business making a buck and truly many times not focused on individual care for each person and their unique life and circumstances. (Like years ago when lobotomies were thought to be helpful) It’s scary how unthought out some of our modern medical approaches still are.
My own mom is late 70’s and currently diagnosed with Polymyalgia rheumatica and a liver tumor and jaundice, yet they are prescribing 8 weeks of PT 3 times a week! insane, she can barley get to the bathroom and back in her hospital room and has been on/off running a fever for more than a week let alone consider PT right now, and they have yet to remove her tumor, so why push PT? And this all at a supposed great Hospital.
My lowly education and 20+ yrs of helping people with similar issues as this article talks of tells me they need to loosen joints and stuck fascia and muscles, to put it simply they need to help their body relax and open up the restricted areas, reduce inflammation (thru nutrition, hydration, decreasing physical tension and mental stresser sorts of things) and then slowly address exercise (making the muscles work more than routine daily stuff) to strengthen or build more muscle, increase circulation and endorphins etc. promoting healing.
Also as a Christian I realize all body and thought issues have a spiritual root - which only God can truly help us to change or let go of, but thank God for folks who can also speak encouragement or walk a step or two with us along the way!
“effectiveness of cognitive behavioral therapy (CBT)”
I’ve been saying this for years. CBT is only an escape mechanism that allows an individual to escape their emotional wounds and hide in their logic. Same is true of EMDR.
Cognitive Behavioral Therapy does not work as the wound is emotional and cognitive therapy works utilizing logic.
Emotional wounds are not logical and cannot be healed logically. These wounds are emotional and can only be healed emotionally.
I’ve done research on therapy techniques for over 25 years, especially PTSD. Skip Rizzo had outstanding success utilizing virtual reality and then psychotherapy.
The reason he had so much success while Walter Reed did not have much success with virtual reality is that Walter Reed was using virtual reality to bring the emotion to the surface and then they tried desensitization by repeated exposure while Rizzo used psychotheraputic techniques to reprogram the emotional memory and remove the stored negative emotion.
Why does this work? Because while emotional memories cannot be healed logically, the emotional subconsciousness cannot differentiate between imagination and reality.
Thus in a simple two step process that involves owning the emotion (which is what virtual reality does) and then imagining a different outcome, I’ve had PTSD that had been disabling vets since Vietnam (for over 35 years) totally removed instantly and permanently.
I have the unusual ability of physically feeling and being able to read the stored memories of others just by being near the person. Memories are not stored in the physical body, but are anchored in the physical body. I can reach out with my hand and touch the stored memory and knock a person off their feet, even though I am many feet from the person, do not touch them in any way, and their eyes are closed. I use this ability to test whether psycho-therapeutic or pharmaceutical techniques are merely defense mechanisms blocking the retrieval of a memory or are actually resolving the issue.
PS this is also why a recent article on using visualization to heal spinal cord injuries in paraplegics showed so much success.
I developed the tinnitus after my bout with meningitis. This was almost 30 years ago and the ringing is still there.
I have found that when I pray or meditate the tone of the ringing changes i.e the pitch goes up the higher I go in consciousness frequency. I use it as an indicator or the level my consciousness is at during meditation.
It never has gone away... I’ve just considered it a new type of hearing where I hear from my soul or spirit rather than just my physical body.
Many liver disorders are actually caused by a person taking so much medicine that they deplete the enzymes necessary for detoxing the body which also create the half life in medicines.
Specifically the Cytochrome P450 group of enzymes. Six of these enzymes metabolize 90 percent of drugs, with the two most significant enzymes being CYP3A4 and CYP2D6.
I took my 95 year old mother from the nursing home where she could not even roll over in bed, and within 3 weeks of detox in my home had her up and walking again. Atfer detoxing her for 6 months, I took her to a DR who was the Chair of Geriatric Medicine at a big med school and he ran blood tests. Funny thing.. the kidney disease she had for over 40 years was completely gone!!!
This is also why you should not drink grapefruit juice as it depletes the same enzymes.
“why is medicine and science so backward thinking? “
I agree. I recently went to a symposium at one of the top neuroscience research universities in the USA which in cooperation with their medical school faculty put on a program on the “Neuroscience of Psychotherapy.”
I watched as a presenter used ego validation to heal a psychological issue in a man. (Clinical case video) I laughed at her technique and commented that I could send the patient to a prostitute and get the same result for a much lower cost and it would work better than her therapy. Ego validation allows a person to shift consciousness into the logical aspect of consciousness and feel better by escaping the emotional pain, but it is very temporary. It does not and never will heal an emotional wound. (No, I am not recommending prostitutes, but merely pointing out that while ego validation makes a person feel good, it does not heal the emotional wound creating problems in the person’s life.)
A few tips would be great because it’s 10 years and I’ve even looked into having an operation to take the little hearing i have in that ear away...
Wont work docs say..not they agreed to do it anyway..they said you could be totally deaf and still have the tinnitus.
Either the cure or my loss of sannity will come first. 48 here.
Venture through the sound rather than trying to run from it. You will find much more than you imagined. You will not go insane, but will venture into a new aspect of yourself.
I am saying a prayerful blessing for you and sending it with this message.
In my three plus decades as a physician I have always been a bit skeptical of “diseases” for which there is no subjective test.
Videonystagmography (VNG) is a technology for testing inner ear and central motor functions, a process known as vestibular assessment. It involves the use of infrared goggles to trace eye movements during visual stimulation and positional changes....
That’s my second ####ing test. The first one was an MRI that showed bruising on the brain
Is that enough ####ing proof for you.
Instead of offering a suggestion or two, you come back with some dumb ####ing answer.
HTF did you ever become a doctor.
Brain stem, cerebellum and thalamic damage.
I’ll send you the ####ing reports.
What an ass.
I was referring to Chronic Fatigue Syndrome. Not tinnitus.
It’s just not tinnitus. And I apologize.
It’s ths whole brain injury thing!!!
WHAT can’t you guys fix? Repair the damaged cells.
Get rid of tinnitus and pain and insomnia and tremors, come on man!
Lots of soldiers suffering out there!!
We’re far away from treating brain injuries in any real fashion, aren’t we?
As to the question how I became a doctor? The usual way. At least for white guys 40 years ago. I studied my ass off. 6 or 7 hours a day out side of classes I never missed where I heard lectures for which I had prepared by taking notes on the covered chapters in advance. I discovered that if I put an hour of preparation, sometimes two, into each lecture beforehand and as much again afterwards I could prepare for exams with just 6 or 7 hours of review and in doing so make an “A” on every exam. So that is how I got my undergraduate degree.
How I got into med school was by doing research on the dopaminergic transmission system while working part time as an orderly in a hospital as well as placing in the top ten in my class of 1600 taking two semesters Organic Chenistry. I also did very well in Physics and Biology. Two semesters each.
Upon reaching Med School I was dismayed to discover my secret was not unknown to my classmates who had all gotten there by the same process. Unfortunately there were not enough hours in the day to excel amongst my peers by this process and so I finished the first two years of Med Scool only near the top and not at the top of my class. Even so, the previous six years of sleeping as little as possible to maximize my study time was good preparation for the final two years of Med School during which I got to stay awake every third night doing everything the interns asked of me. Learning how to stay awake for forty hours every other day took two years but it was an absolute preparation for the internship and years of residency that followed. Along the way, I took the first part of the Boards. Which was the second all day exam with 800 questions, the first being the MCAT or med school admissions exam, which I smoked, by the way.
So, in answer to your question, that is how I became a doctor. Of course, one cannot be licensed until you have completed an internship and passing a second Board Exam which again is an all day, 800 question exam. But wait, there’s more! One cannot be paid by insurance without having a Board Specialty and so I spent another five years during which I discovered that learning how to function well while staying awake and working constantly as efficiently as possible for forty hours every other day was much needed preparation for Residency Trining because I not infrequently got to stay awake and on my feet for forty hours every day.
I wish I could say that in spite of the long hours we were treated well by the faculty that evaluated our every action and word. Unfortunately, that was not the case. But again, God was looking out for me because between my second and third year of med school I had the opportunity to attend the US Army’s jump school at Ft Benning. The constant harassment of the Black Hats we endured there was good preparation for the treatment I received from the faculty during the subsequent decade in Residency Training.
It was a good thing I was so busy during these years in Residency Training because it left me little time to be concerned about the fact my wife and children were living in the “wrong part of town” and my wife and kids were living on chicken neck soup. My wife was a miracle. She could feed herself and the kids on 29 cents per meal.
So, in answer to your question, that, is how I became a doctor. It only took a couple of decades and I got to do the whole thing indoors and wore white clothing that was even laundered for me and wash my hands slightly less than a total neurotic. I have had my arms covered in blood from a patient with AIDS on more than one occaision so you might imagine hand washing would be a frequent benefit to such a cushy job. Generally speaking I have been able to deal with patients and families who are experiencing one of the worst days of their lives with empathy and have been treated well but I have seen colleagues threatened and attacked for just doing their job. I even had a lawyer tell me someone like me needed folks like him to “look over our shoulder” to make sure we did the job properly, and he must be right because there are so many of them making a living at it.
So it has been a wonderful experience and I have such a wealth of memories and have learned so much that I would not change a thing. Not a minute. I have delivered 75 babies in my three years of primary care residency and in my 6 years of neurosurgery residency I have clipped aneurysms, done carotid endarterectomy, many brain tumors, learned how to hit a 1 mm target through a one cm. hole in the head, and many more great things to do.
I am sure that this reply is now so long you nor anyone else will read it but this is the short answer to your question, how did I become a doctor. I wasted decades learning very ingesting things and the rest of the time I rode my Harley.
My cousin’s sister in law recently died of the human version of mad cow disease.
The doctors were paid a bundle to tell her she’ll die within four months and they can’t do a DAM thing about it.
They’re so out of touch most doctors think homelessness cayuses brain injury and not vice versa.
Tens of thousands of soldiers are not getting SSDI because 1 tesla machine can’t pick up tears in vast swaths of cells, so the docs say they’re faking.
They then have no money, the soldiers, and no hope. Which leads to horrific suicide rates among them.
Yeah, you guys are doing a bang up job.
Yeah, I was pondering things the other day about PTSD and soldiers and I have to say I can certainly understand how one might be stressed in an environment where death all around you is a common occurrence for year after year while you and your family try to survive on less than minimum wage but you don’t have many quiet moments to regret that because you are ceasingly tasked to deal with blood spattering everywhere and fully aware that every decision you make in those moments someone’s life hangs on those decisions but you can rest assured that each of those decisions will be carefully evaluated by others who are far away and have a great deal of time to be certain they can assist you in the future by improving your performance. I think I can understand, if I try very hard, to imagine what an experience like that, which, thank God, has never happened to me.
Wow. You managed to not answer an entire question and showed YUGE ignorance.
PTSD is real but it is too often diagnosed when brain injury is a big factor. I know, i get the symptoms.
Pompous asses such as yourself wont comment on all the times you get to tell someone “you’re gonna die and we dont know what the #### to do cause we’r overpaid, overrated snobs.
Mad cow, dead. MS, good luck. Stage 3 cancer, so long!! MD, see ya!! Brain damage, “we haven’t got a clue how to help ya!”
Psych “here, see if these meds work though we DONT know how they work but they send us on great vacations..”
What a ####.
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