Posted on 05/02/2012 10:02:21 PM PDT by proud American in Canada
My nine year-old nephew has been diagnosed with Adrenocortical carcinoma. My sister lives near Madison, Wisconsin, and is seeing a doctor there for him. He is on mitotane and probably some other drugs I'm not aware of.
Apparently the prognosis is not good, like a one-in-five chance of making it through five years. A friend of mine mentioned the Children's Hospital in Philadelphia; apparently one of the best pediatric cancer specialists works there.
My sister is doing everything, and I mean everything. Supplements, massage, Reiki therapy, in addition to everything the doctors recommend. She also has him enrolled in clinical trials.
Now, I learned today that the doctors have made three massive mistakes--mistakenly diagnosing him when he was a toddler (and had pubic hair, muscles, and was beating up his older brother). In 2005 my sister and her husband were told they had tested him for Cushing's disease (?), or some other disease, when they had not. Then the doctors took an ex-ray in 2010 and missed the tumor (the size of a cantaloupe when they took it out a month ago; it's now metatasized into his lungs, although the last round of chemo seems to have shrunk the nodules a bit.
They're going to continue chemo, etc., as long as progress is made, otherwise; they're going to let him enjoy what time he has with his friends and family.
As a trained lawyer, I am sorry, but these mistakes over the years are lawsuit material. However, that is for another day. Not now. Now, the goal is to make him one of the 20% who live.
I know there so many Freepers who are smart and educated and I'm hoping there are some doctors or researchers, people out there who understand this.
I live in another country and am extremely emotional about this; it's affecting my work and sleep, although that is not important.
When I called my dad to say goodnight tonight (he lives right next door to them), I suddenly thought: Free Republic! I must ask for their advice!
In any case, if anyone has any advice or knowledge about this, I would really appreciate hearing from you.
I'm about to commit one of the cardinal sins of FR, posting and kind of running. It's really late here and I have to go to work, but I know I won't have time tomorrow. I'll stay up for another half hour or so and then check in tomorrow.
In any case, I would appreciate your prayers.
*posting while tears are running down my face*
Of course we will pray for your dear nephew!
Be positive and believe to the point of absolute certainty that you will attend your nephew's wedding.
God Bless you and your family.
Prayers
It’s the name of a local rattlesnake, aka Southern Pacific. You are the first to ask what it means!
The American Cancer Society has been busy not finding a cure for cancer for the last 70 years. They are the same people who will not find a cure for AIDS. But they get all the research money, and control the peer-reviewed literature.
Thomas Cowan is a great resource. He can do phone consults, and that may be a good way to determine whether you want to follow up in person.
God Bless!
Thank you, blackpacific!
I’m a journalist and my editor has often talked with me about how money keeps flowing into cancer research; golf tournaments, daffodil sales, etc., but “where’s the beef?”
I’m sure some progress has been done, but for laymen, it’s really hard to tell.
I’m going to forward this thread to my sister now. Thank you all for your help!
Try “The Germ that Causes Cancer” by Doug Kaufmann. His theory is very interesting. He has a diet that suppresses candida. His diet is very similar to the GAPS diet, which we follow. www.gapsdiet.com
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