Vanity - Bone Marrow Transplant Recipient

self ^ | 7/4/2003 | muffaletaman

[muffaletaman]

I hope this is appropriate... Happy Fourth of July to those of you who are out celebrating today!

[muffaletaman]

I have sent this to the "report abuse" moderator just to make sure it is OK... just wanted to let everyone know.

[shattered]

She will be in my prayers along with the rest of your family. God bless.

[andysandmikesmom]

I sent my very best wishes and prayers to you....I understand all too well, how difficult this is for all concerned...

I understand because our family went through the same thing in 1985...my fifteen year old son had been diagnosed with AML(specifically APL), in 1984....AML, in general and its subgroup APL is very, very rare...our son was intially treated at Madigan Army Medical Center, as we were in the military....but our oncologist was in constant contact, with Childrens Hospital up in Seattle...the docs in Seattle asked us, when our son was able, to be able to see our son, ,as they were so interested in his particular leukemia, and had not actually seen a case of APL in eight years....

After my son was initially treated and obtained a first remission, myself, my husband and our other son were tested to see if we were a match for a BMT...none of us were....it was devastating...

A year after obtaining a first remission, our son relapsed...it was then proposed that he get an autologous bone marrow transplant, which is where they take the patients own marrow out, just like they do with donors, that marrow treated and then returned to the patient...unfotunatley, ,when they took his marrow he had had a second relapse...

So they then proposed doing the allogeneic BMT, using me as a donor, even tho I was only a 4/6 match...both my husband and other son were only 3/6 matches...it was a dangerous and probably useless challenge to take on, but it was our only hope...

Unfortunately, before the procedure was begun, our son had a fatal cerebral hemorrhage, and died...

I tell you this, not to frighten you, as I am sure you are aware of all the risks of a BMT, but are are also fully aware of the great potential of this BMT to save your childs life...I tell you this, to let you know, that I am one parent, who understands all too well, the stress, ,and strain, and heartache, and shed tears that have become part of your family life...

While we were at Fred Hutchinson, we were treated so well, with nothing being spared to care for our child and for our family...we were there just a short time, so hopeful that a successful BMT could be done for our son...in our case it was just not to be...

But I surely will pray for you and your child and your whole family...

God bless you, and please keep us up to date with how things are going...

[trussell]

Request for letters and cards PING.

Please post your reply to muffaletaman.

muffaletaman, you and your family have my prayers. Keep us informed please.

[trussell]

Request for letters and cards PING.

Please post your reply to muffaletaman.

muffaletaman, you and your family have my prayers. Keep us informed please.

[trussell]

Sorry for the double post. Slight hiccup.

[firewalk]

Bttt

thanks for the ping trussell

[dansangel]

You and your family are in my prayers. May God our Father watch over and guide the surgeon's hands. May he hold your daughter Lani and all of her family in his loving arms throughout the recovery process. May God bless Jennifer abundantly for her selfless contribution to her sister's life. May you all find the strength as a family to comfort and support one another throughout this lengthy but necessary process.

We ask this in the name of the Father, the Son and the Holy Spirit, Amen.

Earl, please keep us updated when/if possible.

Meekie and Salvation - please ping your prayer lists - thanks.

[MeekOneGOP]

Prayers for your daughter, Muffaletaman.

[Tolerance Sucks Rocks]

I have sent this to the "report abuse" moderator just to make sure it is OK... just wanted to let everyone know.

Dude, if the admin moderator erases this thread, I'll be attending the first snowball fight in Hell!

[martin_fierro]

"Abuse"? No way. A worthy request/post if ever I read one.

BUMP

[hoosiermama]

.

[onyx]

I offer you my prayers and best wishes for your daughter's full recovery.

[BlessedBeGod]

Bump!

[SAMWolf]

Prayers being offered.

[Flyer]

Prayer Ping!

Send this young lady a card or a teddy bear or something. (No flowers or food - see above)

As always, a FReep mail will get you on or off this Houston topics ping list.

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[glock rocks]

I'm offering my prayers for Lani Marie.

[xJones]

Thanks for the ping, Meek, this thread nearly slipped through the 'net. Muffaletaman posted at 2:12 p.m. yesterday and didn't receive a reply until 10:18 p.m. Without your ping I know I wouldn't have seen it.

Muffaletaman, prayers and 3 cards have been sent from here. Trust God and try not to worry, little Lani Marie is in God's hands, the safest place to be.

[xJones]

Bill, would you please add Lani Marie Koskie to the daily prayer list, and also her sister Jennifer who will be donating bone marrow to her. And of course, prayers for the whole family during this difficult time. Thanks.