Was diagnosed with RLS I think in 2013. Horrible, electric-shock like jolts in legs, cramping in my feet, calf muscles, thighs, cold chills, and tingling and jerking in the muscles along with numbing spates. Could not walk or drive. Or sleep. Wasn’t sleeping so a doctor put me on alprazolam. That made my BP go down so off the alprazolam and on to chronic insomnia and RLS.
Neurologist told me, deep brain injury from the taper off the drug. Causes RLS and the other. I’ve been on pregabalin ever since high-dose. I’m quite the carnivore so lots of meat. No link there.
My feet still give me fits and feels like sand in my left sock. Tingling, pin pricks, you name it both feet.
I can walk and drive to some extent.
Massage does help and I’d recommend that. Also a foot massager that distracts the nerves so they’ll shut up before rest.
Hang in there and keep trying things. God Bless you it’s really hard dealing with this mess.
“I’m quite the carnivore so lots of meat. No link there.”
I don’t know a lot, but I know protein plays a part in muscles, I used to be an LMT full time and helped many people with similar muscle nerve type issues over decades.
I knew I read more recent about RLS and protein connection.
Maybe this will help you find a missing link for you or others? I don’t know how to post links well, its search results about which proteins have been found more helpful for RLS.