I’m sorry-I started rambling on- I wish you the best with your health- you have been dealing with your health issues since childhood. I can’t imagine how terrible that must’ve been for you. Childhood can be rough enough if you’re healthy sometimes. Hang in there.
I wouldn’t say my situation was terrible other than when it first showed up out of nowhere. That wasn’t fun and it nearly killed me, but since I was delirious at the time that part didn’t bother me.
I had decades of remission before the disease returned. I didn’t even know that it could return. And like most everything autoimmune know one knows why it does what it does. You can wear yourself out hunting for “the cause” and end up right where you started, no wiser than before.