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To: fidelis

Tell your doc about that immediately if you haven’t. I have irreversible neuropathy in my feet now, and a little NEUROPATHY in the hands- the hands were worse, but they did clear up a little bit-butmthe feet didn’t. I can stub my toe now and not feel pain like I used to- I can feel that something g happened of ccourse, but not the pain. In one hand I had a nerve severed due to operation on tumors, and the hand on the top is numb and I’ve burnt it several times and didn’t know it reaching into oven to take out a roast or steaks.

Not fun. But do tell the doc. They may want to reduce the chemo or something, maybe a. Drug change or something. Not,sure what they. An do for it. Are ou taking alpha lipoic acid while doing the chemo? Supposed to help I guess slow the progression. Gotta be a certain type r-alpha or something like that.


9 posted on 02/23/2025 10:35:00 PM PST by Bob434 (...Time flies like an arrow, fruit flies like a banana)
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To: Bob434
"Tell your doc about that immediately if you haven’t."

She knows about it, but hasn't suggested anything in the way of treatment except keeping my hands moisturized. I'll bring up the cryotherapy next time I see her and see if it's available in my area.

"I have irreversible neuropathy in my feet now, and a little NEUROPATHY in the hands- the hands were worse, but they did clear up a little bit-butmthe feet didn’t. I can stub my toe now and not feel pain like I used to- I can feel that something g happened of ccourse, but not the pain. In one hand I had a nerve severed due to operation on tumors, and the hand on the top is numb and I’ve burnt it several times and didn’t know it reaching into oven to take out a roast or steaks."

It's funny, but I can still feel pain in my hands and fingers where the neuropathy is worst, like if I touch a hot pan or happen to poke myself with a sharp object. It's more just numbness and difficulty having any tactile grip with my fingers so that I'm afraid to drop things because I can't tell how tight I'm holding it. It's especially frustrating picking up really small things like screws and paperclips.

"Not fun. But do tell the doc. They may want to reduce the chemo or something, maybe a. Drug change or something. Not,sure what they. An do for it. Are ou taking alpha lipoic acid while doing the chemo? Supposed to help I guess slow the progression. Gotta be a certain type r-alpha or something like that."

I'll look into that. Thanks.

13 posted on 02/23/2025 11:07:35 PM PST by fidelis (👈 Under no obligation to respond to rude, ignorant, abusive, bellicose, and obnoxious posts.)
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