It sounds like you have cns involvement. My induction was a 30 day stay in the hospital. It was 24 hr chemo for a week straight. So after bringing the wbc count to zero, they keep you there till neutrophils reach a safe level. Without complications , it’s a 30 days stay.
I went on to have a donor stem cell transplant. They discussed it at about the 2-3 week mark when the mutation info was fully available. Have they discussed this as an option?
I’m sorry you had to go through with all that. 30 days is a long stay. My hospital stay was 5 days.
They found some mutated cells near the spine so I have to go to the infusion clinic 3 times a week for a spinal tap with a chemo infusion. Then I start the regular chemo treatments. The side effects are minimal, thankfully. Some nausea and headaches that disappear in an hour.
This is all new. I don’t know a lot of leukemia lingo I read and hear about. But you having 10 years gives me a lot of hope.