[cherry]

my husbands cousin died from it...relatively young...she was a slow progressor...but eventually ended up completely immobile....no speech...just a constant grin....

[cherry]

in reality, its very often the families that want the dying person to die a little quicker....not joking...any twitchm any grimace or even a smile or a movement of the finger they would call for pain meds...the drs would have opened ended pain meds on demand so we nurse had to follow orders...

I swear we had a gay guy dying, he was out of it, but his "friends" with POA sat around like it was a party...every hour they wanted an injection for him, around the clock...he was gone in 24 hrs and they were so happy with their selves....

[Dacula]

My Mom could only blink her eyes. We made several signs and had an alphabet board. We could always find a way to communicate. This was 30 years ago this year.