I hear ya…
I have sarcoidosis and ulcerative colitis. Both working together destroyed my liver. I was blessed with a new one through transplant surgery 2 1/2 years ago, and the “best part” is I still have both diseases.
If our immune systems weren’t so STUPID, they would realise that they are killing themselves, as well!
Part of my problem may be genetic, but I don’t know my biological family, as I was adopted when I was 5 months old. I did have a DNA test, so I have a theory that it may be genetic, but I don’t know for sure.
Things are as they are, and I’m blessed to be here.
“I have sarcoidosis and ulcerative colitis. Both working together destroyed my liver.”
That will keep me from whining about nephrotic syndrome. By comparison I’m lucky. As you say “Things are as they are, and I’m blessed to be here.”
“Part of my problem may be genetic”
I think that autoimmune researchers believe that most of these diseases are genetic. They just haven’t identified them all yet. My troublemaker is a CD20 protein, and it’s encoded by the MS4A1 gene. There’s a MAB that will kill off immune cells expressing CD20 so I get to use that. But like most of these meds it’s very strong and carries side effects.