Chuck,
In your report on your condition you mention nerve regrowth. I will advise some that nerve death in extremities due to low B-12 and chemo often leaves damage to the extent that there is no regrowth or regeneration.
A lot of money gets wasted trying to bring regrowth or restoration about. I have had such nerve damage for four years and extensive tests by neurologists. As my stomach was removed it produced Intrinsic Factor which is required for B-12 levels to be sufficient. I now take daily large B-12 supplements but B-12 absorption is tricky and just the minimum RDA won’t due it with a gastrectomy.
Nerves are tricky things, we don’t notice them until one or two start acting up then all hell can break loose. My whole Giant Cell Arteritis began with a month long case of Bells Palsy. Cranial nerve #7 decided to get mad and inflamed and my face went all droopy for a month. It’s weird that the Docs still don’t know why this happens or what to really do for it, same with my GCA. For now the treatment is Prednisone and constant checking of my hs-cRP levels.
Good luck on your health journey, it sounds a bit more serious than mine at the moment. This getting old is for the birds. Shit just starts popping up out of nowhere. I was watching my favorite Bengals in the playoffs last year in January, and that day was the start of my headaches that wouldn’t go away. I couldn’t have been more relaxed, in a good mood and all that, yet down inside my body was boiling with inflammation and I had no clue. The docs and I still have no clue as to why it happened either, that’s the frustrating part.