I’ve had a lifetime brutally rife with Cluster headache disorder. This study makes sense to me since I’ve heard this years ago, that it was related to the sleep cycle. I remember they mentioned the pituitary gland which is located near the center of the brain and has to do with sleep cycle regulation, at least that’s what my neurologist told me 20 or so years ago.
When I was in Cluster periods, my headache attacks came at practically the exact same time every day for weeks, even months at a time. They are indescribably excruciating in the level of pain. I was a case study for many doctors I’d seen back in the 70s and 80s because most doctors in those days had no idea what it was and didn’t even have a name for the disorder. I went to alot of doctors looking for help. They tried literally everything on me. Nothing worked, until a neurologist put me on a steroid called prednizone, which seemed to prevent most headaches while I was in cluster.
The clusters finally started to wane about 10 or so years ago and now I don’t get many Cluster attacks, thank God.
My heart goes out to anyone who has Cluster headache, doctors have told me that clusters are probably the worst pain a body can produce on its own. I believe that, cause I’ve been there.
My Husband suffered with cluster headaches for years until a massage therapist helped get rid of them. He has not got one since. If I remember right. The therapist concentrates on a neck muscle while my husband was sitting in a chair. it was daily for a week then once every week for 1 month. It worked. She was taught by a man specifically for the cluster headaches. My husband could not take prednisone because it would cause him to get pancreatitis. Thank God he found that therapist.
I had cluster headaches as well. Talk about PAIN. Nothing worked for me except oxygen.