“Don’t miss post #18. That’s your gold right there”
Yes, thank you. I think when I see him I’ll try to talk to his Wife alone for no other reason than to get her email address. I can send her info then she can decide if it’s something to bring to the table. I’m sure he is / will be bombarded with info and will be overwhelmed trying to filter through everything that will be going on. Poor guy, he just beat Non-Hodgkin Lymphoma less than three years ago.
That’s a wise way to handle it. Good thinking.
You (and he/his family) might also consult cholangiocarcinoma support forums. In my experience, you often meet very smart well-informed caring and generous people in such forums who have done extensive research, share their experiences, etc., wealth of info — and offer the kind of emotional support only those who have “been there” can. In many such forums, medical specialists and researchers in the field pop in and share information as well.
Here’s one such forum:
https://cholangiocarcinoma.org/db/
You can do an internet search to find others if you think it might be helpful.