YouTube’s deleting content mentioning alleged “whistleblower” Eric CHAR-A-MELLA. We’re living in a bigtech nightmare.These companies are fully controlled by the liberal speech police. Every episode of mine they ban I’ll repost in multiple forums 4 max visibility #StreisandEffect— Dan Bongino (@dbongino) November 10, 2019
I like the title “whistleleaker”’
youtube, facebook, twitter.....and they’re getting away with it.
good morning! i increased my nerve medication last night and slept in today. Woke to snow! I wish i had seen the storm though, we don’t get this often.
So here’s my story ( and i’m sticking to it!)
I thought I had a case of dry eyes from hell. My eyes were dry no doubt but it was way more than that. Tried rounds of ridiculously expensive out-of-pocket treatments, plus traveling all over the state and then some, and it never really touched the pain. Finally, someone on the Facebook dry eye group suggested cornea neuropathy. So I wandered over to the cornea neuropathy group, and bingo, my symptoms were identical. (I don’t normally do social media except for here, but for orphan diseases, it is invaluable. So I’ve come to notice.)
So I ended up in Boston in October, saw a doctor there that has been doing research on corneal neuropathy. He also has the big expensive microscope that can actually see the corneal nerves. So I was diagnosed with a moderate case, said I am missing half of my corneal nerves. Put me on a protocol of lotemax, autologous serum drops, and nortriptyline. The serum drops are made with my own blood, so since I live in the middle of nowhere I get those mailed.
Because apparently the corneal neuropathy is not enough to deal with, I started having some pretty significant vision loss pretty rapidly. In August I was 20/20 with current glasses (I only keep track because I’ve been to so many doctors and they always test). September 17 I was 20/40. Now I’m somewhere around 20/100 and this came on all of a sudden. So I’m going to get new really thick glasses, exam on Thursday. But the cause of this is the interesting part. Been diagnosed with keratoconus, which I wouldn’t wish on my worst enemy. It’s progressive and eventually can’t be corrected with glasses so you have to get very expensive lenses and eventually a corneal transplant. Went to a cornea specialist in Asheville last week, just to see what treatment plan he would recommend, and he said my keratoconus appears to be stable and he thinks the vision loss is from cataracts!
I’m excited! As someone that has been highly myopic her whole life, I’ve been looking forward to those IOLs And seeing like a normal person for the first time ever! However, this couldn’t have come at a worse time. Cutting into my cornea, which the surgery which is the treatment for both conditions does, will surely irritate those corneal nerves. When I got to 40 or 50 mg nortriptyline my pain disappeared. For the first time since January 25 I am pain-free. I’m not real anxious to change that, but neither do I want to risk losing vision permanently.
so the next step is to figure out if it really is cataracts or carrot cake donuts (left that in for entertainment purposes lol). Going to see my keratoconus optometrist on Thursday and see what he says. (And get new glasses! I’ll probably need them every few months until we figure this out, boy has this been expensive.) Found another cornea specialist in Asheville and will go see what he says the week of Thanksgiving. If everybody corroborates the cataract story, when I go to Boston in January I’ll see what he says about cataract surgery. I know at some point the cataracts get so big you have no choice but to have them removed. So I’ll just have to pray The neuropathy doesn’t progress with the surgery. If I have keratoconus it’s even worse, there’s a surgery they do directly on the cornea that stabilizes the vision loss. But if I don’t do it my vision will keep deteriorating rapidly. That’s the scary one so I’m hoping it’s not it.
So that’s it for now. How have you been? And everyone else here? I have a lot to catch up on!