Sounds very difficult.... Please hang in there! Will pray.
The pain was intense enough today that I just rolled my eyes to the right, saw my meds sitting just outside of arms reach and refused to move to get them. It was terrible trying to figure out how to get up, get the meds, get a drink and coordinate the capture of all aspects to get the meds into my belly! It took me about 2 hours of laying there in that condition before I finally resigned myself to knowing, if I was going to get relief, I was going to have to force myself into more pain first.
The “LALA” as one other person called it, otherwise known as dilaudid, is getting to the pain a bit more than it use to...I’m praying it will get better after the 25th, when they will better program the unit. I think I may have moved the lead a little when I was trying to get up or turn over...the sensation is not in the same areas as when he programmed it Friday. I can’t bear to eat...drinking is something I have to force, I sit with a bucket next to me all the time, I feel so nauseous that I can’t figure out how to put food in my tummy and keep it there. This might end up being the best diet idea ever invented! Just program it to buzz in the stomach and the person can quit eating, forever!