FREEPER LILYRAMONE ON SOPHIA'S TRIP FOR SURGERY

self

[Thank You Rush]

Well I must tell you what has happened. Sophia's surgery is in eight days and about a week ago I asked if she wanted anything for the trip to Boston. She said she wanted me to get the entire world to pray for her on the day of the surgery. I started making calls, sending emails, and it is starting to happen!!

Our congressman Jodey Arrington went on tv to tell her he is praying! He sent her the most beautiful private video last night that made me cry. This man is a worthy leader in politics as he is a sincere man of God.

Here is the news segment that aired last night

http://www.everythinglubbock.com/news/local-news/brownfield-girl-asks-for-prayers-on-day-of-brain-surgery/917696568

We created a Facebook page and Twitter account, I never thought THAT would happen, but it is actually working to spread her request.

She was so scared two weeks ago, whispering to everyone that she didn’t want to go to Boston, she didn’t want the brain surgery, but now she is so confident about the surgery because of the outpouring of prayers.

Can you spread her request to FReepers and ask them to spread the link? I updated her website and added it there at www.ninjakittensophia.com

I reached out to everyone from our local paper to Prime Ministers from Israel, Japan, Australia, New Zealand (to name a few), archbishops and bishop office around the US, her favorite Christian band Needtobreathe, and some actors. Kevin Sorbo replied to me and posted her request on his Facebook and Twitter feed! After he did that she started getting hundreds of personal prayers! I’m still a little lost on Facebook sharing/liking postings but my husband tells me her story has been shared thousands of times.

For weeks we have been approaching strangers asking them to pray for her but for the first time I see a really great reason for our family to be on social media!!

I told my husband, we are going to arrive in Boston and the surgeon is going to probably say “Geez, nothing like a little pressure from the world watching!”

[Thank You Rush]

“”How is she doing?””

Thank you. The last posting on her website is from Monday - I haven’t seen or received any other word. She was doing great on that posting - they talking about releasing her soon to go home. She was enjoying watching the snowfall from her window and looking forward to a playdate with her best friend when she gets home. That is simply amazing to me. When you think of the major surgery she had and she’s in that kind of mood? Unreal. I bet everyone is exhausted...

If you haven’t checked out her website, you will enjoy it. Lots to read and lots of pictures...

https://ninjakittensophia.com/

[cyn]

Here it is — thanks for posting & updates. I’d lost track of this thread. Have added keywords LILYRAMONE & SOPHIA.

Continuing in prayer for Sophia & family through these challenging times.

[Thank You Rush]

I just checked Sophia’s website and found this - HALLELUJAH!
They’re home. Her mom hadn’t posted anything since Monday so I was beginning to worry... Thank you! You can see new pictures at the site:

https://ninjakittensophia.com/

SATURDAY FEBRUARY 3, 2018

1:15 a.m. We are about an hour and half away from home!!! We were discharged from the hospital on Tuesday January 30th and remained in the Boston area until our final appointment in clinic with Dr. Superman on Thursday. He gave us the all-clear to come home and we spent most of Friday traveling back to Texas!!!

Sophia is doing great! We gave her the privacy and time she asked for to adjust to her post surgical state and now her confidence and personality are back to normal! She has even approved five post surgery photos to share now that she is finding her style with her new headgear. She visited the Boston Aquarium and Science Center but spent most of her time in the hotel playing stuffed animals with us and playing together as a family. You can view these in a new photo section labeled Boston Post Surgery, where I will add more photos as she approves them.

Dr. Superman and his staff were perfect! From the moment she met “Dr. Penguin“ from anesthesia, who quelled her anxiety before sedation, to the entire nursing staff that cared for her needs during recovery and kept her spirits and confidence up during and after her surgery.

Dr. Superman could not have impressed us more! His confidence, knowledge, and skill are simply remarkable!

Sophia will return to Cook Children’s Hospital in Fort Worth for MRI and MRA images in six months. Sophia was excited to know she will be seeing Dr. Stoic because she says she plans on giving him a big hug, tell him about her time in Boston, and thank him for helping her get there.

If the images reveal stable blood flow, she will return to Boston six months later to have a catheter angiogram to analyze the progress of her revascularization.

Thank you so much to every single person who has prayed for our little girl! Sophia’s journey is not over, she has exciting news we will be posting very soon!

Thank you again for understanding that she needed our attention and focus to get herself back on track. She has been chatting all day about seeing her best friend this weekend, seeing her pets, and introducing her new stuffed animals to her old ones.

God Bless!!