Posted on 10/02/2010 11:17:51 PM PDT by Jim from C-Town
Douglas Charles Roth died at The Cleveland Clinic Main Campus 11:10pm Friday October 1, 2010. He was surrounded by his Aunts and Uncles, Grandpa and Grandma and his Parents Catherine and James Roth. He was two years and one month old.
Wednesday he vomited his second feeding and was very lethargic. We took him into the pediatrician on Wednesday at 4:40 pm and he had good vital signs but a mild fever of 100deg. The doctor and I decided that it would be best to have him at the Clinic and Cathy and I took him in to the Main Campus at 7pm.
He was placed in the Pediatric Unit and they where finally able to get a line in him after several dozen attempts at finding a vein. He was hydrated and seemed to be doing fine. Sometime early Thursday morning he developed a rapid heart beat and a poor heart rhythm. He was transferred to the PICU and they administered drugs but where unable to control his heart. He crashed around 3pm Thursday during a procedure to put in a groin line to have better access for drugs and fluids. The doctors did CPR compressions on him for around an hour and where left no choice but to put him on an ECMO Heart Bypass machine.
They where able to stabilize him, but his heart would not respond to the drugs and remained in a bad rhythm. They attempted to fix the problem with a catheterization but where unsuccessful.
His little body couldn't continue to fight. We kept him on the Heart Lung machine long enough for all his aunts and uncles to come and see him one last time. After his Uncle Peter arrived from Pittsburgh and saw him we waited another 30 minutes and Cathy and I held him as they turned off the life support machines. He passed very peacefully.
We are very appreciative to everyone for all the love and support that we received during Doug's short life. He was the light of our lives and the best thing that ever happened to us. He made us better parents, better friends, better siblings, better spouses and better people. He will be truly missed every day of our lives and our love for him will never fade.
Douglas touched many people in his short life. Everyone that met him fell in love with him and he will be missed by all who knew him.
Thank you,
Jim & Cathy Roth
CHARGE Syndrome Foundation, Inc. 141 Middle Neck Rd. Sands Point, NY 11050
Or go to Doug's Charge it for CHARGE homepage: http://thirdannualcifc.kintera.org/faf/donorReg/donorPledge.asp?ievent=434831&lis=0&kntae434831=EB2B72DC748741C39B1D814FE4E28ABD&supId=261516566
For more information on CHARGE Syndrome please visit:
http://www.chargesyndrome.org/
Deepest prayers.
Douglas has my prayers, and a donation will be sent. You also have my prayers. I’m very sorry. All I can say is that you were clearly blessed to have such a sweet child, even if for such a short while.
I am so sorry for your loss. May God be with you and the family.
So sorry and prayers lifted...
Prayers up.
I am so very sorry for your loss. Prayers and condolences to your family. I’m now headed over to those pages to learn more about this condition and to make a donation in his name. God Bless.
Oh I am so sorry for your loss, but am glad you had 2 years of precious time together. May God watch over him in heaven and may God bless your family.
Jim (and Cathy), I am so sorry to hear of your loss. I’m praying for you and your family that God will give you the strength and grace to bear such sorrow. I know your little boy is in the loving arms of God.
Words would be inadequate but you all have my prayers.
So sorry to hear about your little one. I pray for peace and comfort for you during this troubling time.
“The Lord bless you, and keep you; the Lord make His face to shine upon you, and be gracious unto you; the Lord lift up His countenance upon you, and give you peace.”
You and your family have my deepest sympathy...Nothing worse in this world than losing a child....The only thing that got me through the lost of my 6th child was Jesus and faith. Your faith will sustain you but it is hard...blessing to you all....
So sorry.
Prayers.
CHARGE children are truly very special. I took care of a little girl with this diagnosis... for a total of 7 years, as her nurse. She was a delight in every way. I think I was taught more about love, compassion and joy....by having this child in my life. God Bless you both..
Good souls like Douglas never leave the hearts they touch. We all pray for your consolation and healing, prayers that will surely be answered by the One who blessed you with such a wonderful child.
So sorry for the loss of your son. Our prayers are with you.
May God welcome Douglas into His loving arms and give comfort to you and your family.
Prayers up for Douglas, as well as for you and Cathy.
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