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Disabled Woman Would Cry 'Help Me,' Caregivers Claim (Terri Schiavo)
CNSNews.com ^ | 9/03/03 | Jeff Johnson

Posted on 09/03/2003 6:09:02 PM PDT by kattracks

(Editor's note: This report contains quoted language and descriptions of alleged multiple instances of denied medical care that some readers may find offensive.)

(CNSNews.com) - A federal judge Tuesday refused to stop a Florida court from ordering the removal of a disabled woman's feeding tube at the request of her husband. However, the judge gave the woman's parents ten days to amend their lawsuit against the husband, the hospital caring for the woman and the hospice where she is being kept in anticipation of her death by starvation or dehydration. The lawsuit also named the husband's attorney as a "non-party co-conspirator" to the alleged violations.

Robert and Mary Schindler filed an emergency complaint Saturday with the U.S. District Court for the Middle District of Florida in Tampa in an effort to block their daughter's husband and legal guardian, Michael Schiavo, from moving forward with plans to remove his wife's feeding tube. Thirty-nine year old Terri Schindler Schiavo suffered a brain injury in 1990 under questionable circumstances. That injury, complicated by a lack of therapy for more than a decade, has required that she be given nutrition and hydration through a gastrostomy or "feeding tube."

Since receiving a $1.2 million medical malpractice award on behalf of his wife, Schiavo has provided only subsistence care for her and, based on affidavits included with the Schindlers' suit, allegedly forbidden medical professionals from providing his wife with any therapy or rehabilitation. He is currently allowing her to receive limited medical treatment for a severe infection under a court order.

Former caregivers file affidavits supporting allegations

Three medical professionals who had cared for Terri in the past filed affidavits accompanying the lawsuit, disputing Michael Schiavo's claims that his wife was in a "Persistent Vegetative State," which is the requirement under Florida law for a feeding tube to be removed. The medical experts also chronicled a long history of alleged denial of care and therapy by Schiavo.

Carolyn Johnson, a Certified Nursing Assistant (CNA), cared for Terri in a nursing home in the early 1990s. She described her shock at being ordered not to provide the same care for Terri as a patient in the same room with a similar brain injury was receiving.

"I learned, as part of my training, that there was a family dispute and that the husband, as guardian, wanted no rehabilitation for Terri," Johnson explained. "Once, I wanted to put a cloth in Terri's hand to keep her hand from closing in on itself, but I was not permitted to do this, as Michael Schiavo considered that to be a form of rehabilitation."

Another CNA, Heidi Law, cared for Terri at a convalescent center in the mid and late 1990s. Law described similar orders she received not to encourage Mrs. Schiavo's recovery.

"I know that Terri did not receive routine physical therapy or any other kind of therapy. I was personally aware of orders for rehabilitation that were not being carried out," Law alleged in her affidavit. "Even though they were ordered, Michael [Schiavo] would stop them. Michael [Schiavo] ordered that Terri receive no rehabilitation or range of motion therapy."

Law also alleged that her attempts to document Terri's potential for improvement were thwarted.

"I made extensive notes and listed all of Terri's behaviors, but there was never any apparent follow-up consistent with her responsiveness," Law said. "There were trash cans at the nurses stations that we were supposed to empty each shift, and I often saw the notes in them."

Law directly disputes Michael Schiavo's claim that Terri is in a Persistent Vegetative State, as well. In her affidavit, she detailed how she routinely provided Terri with a wet washcloth filled with ice chips to keep her mouth moistened and, on at least three occasions, fed Terri flavored gelatin.

"I personally saw her swallow the ice water and never saw her gag. [Another CAN] and I frequently put orange juice or apple juice in her washcloth to give her something nice to taste, which made her happy," Law recalled. "On three or four occasions I personally fed Terri small mouthfuls of Jell-O, which she was able to swallow and enjoyed immensely."

Nurse recalls Schiavo asking, 'When is that bitch gonna die?'

Carla Sauer Iyer was a Licensed Practical Nurse (LPN) at the same convalescent center in the mid 1990s, and also cared for Terri. She described Mr. Schiavo as being "focused on Terri's death.

"Michael [Schiavo] would say, 'When is she going to die? Has she died yet?' and 'When is that bitch going to die?'" Iyer charged. "Other statements which I recall him making include, 'Can't anything be done to accelerate her death, won't she ever die?' When she wouldn't die, Michael [Schiavo] would be furious."

Conversely, Iyer said that when she would have to call Schiavo to inform him of a downturn in Terri's condition, Schiavo would be elated.

"Michael would be visibly excited, thrilled even, hoping that she would die," Iyer recalled. "He would blurt out, 'I'm going to be rich,' and would talk about all the things he would buy when Terri died, which included a new car, a new boat and going to Europe, among other things."

Iyer also described incidents of Terri Schiavo talking, moving voluntarily and responding to external stimuli, descriptions that Iyer said were removed from Mrs. Schiavo's medical records. Both Law and Iyer reported Terri verbally communicating, also contradicting Michael Schiavo's claim that his wife was in a Persistent Vegetative State.

"During the time I cared for Terri, she formed words. I have heard her say 'mommy' from time to time, and 'momma,'" Law recalled. "She also said 'help me' a number of times."

Iyer described Terri as "alert and oriented," and said Michael Schiavo "systematically distorted" Terri's medical condition.

"Terri spoke on a regular basis while in my presence, saying such things as 'mommy' and 'help me,'" Iyer recalled. "'Help me' was, in fact, one of her most frequent utterances. I heard her say it hundreds of times."

Attorney named as 'non-party co-conspirator' to civil rights violations

The lawsuit filed by Terri's parents accuses Schiavo, both personally and in his official capacity as Terri's legal guardian, of violating the Americans with Disabilities Act for refusing to provide appropriate medical care and rehabilitation therapy, which are required by the law and for seeking to deprive her of nutrition and hydration, which is forbidden by the law.

George Felos, Michael Schiavo's attorney and a noted author and advocate in Florida's so-called "right to die" movement, is also named as a "non-party co-conspirator" in the lawsuit. The Schindlers allege that Schiavo, with Felos' help, sought to deprive Terri of her due process rights under the Fifth and 14th Amendments to the U.S. Constitution.

The suit charges that Terri was denied a guardian ad litem during most of the legal proceedings in which her husband sought to end her life and, the remainder of the time, suffered from "ineffective assistance of counsel, due process violations, and blatant conflict of interest with Terri's guardian, defendant Michael Schiavo," who is responsible for seeing that her legal interests are represented.

The only guardian ad litem and the only attorney to represent Terri prior to her parents' intervention in the case were removed when the attorney suggested that Michael Schiavo had a conflict of interest that prohibited him from serving as Terri's guardian.

The complaint also alleges that Schiavo and Felos conspired to deprive Terri of access to her priest in violation of the First Amendment and that the use of a 1999 Florida law in her case represented a Fifth Amendment due process violation of the constitutional prohibition on ex post facto legislation since Mrs. Schiavo had suffered her injury in 1990.

All of the cumulative rights violations are alleged under 42 USC 1983, which provides that, "Every person who, under color of any statute, ordinance, regulation, custom, or usage, of any State or Territory or the District of Columbia, subjects, or causes to be subjected, any citizen of the United States or other person within the jurisdiction thereof to the deprivation of any rights, privileges, or immunities secured by the Constitution and laws, shall be liable to the party injured in an action at law, suit in equity, or other proper proceeding for redress."

The hospice where Terri Schiavo is being kept and the hospital where her infection was supposed to have been treated are also accused of violating the Rehabilitation Act of 1973. That law requires that "handicapped" receive comparable medical care to that given able-bodied patients with similar conditions or injuries. Both facilities are subject to the Rehabilitation Act because they receive federal Medicare funding. The hospital is also charged with violating provisions of the Social Security law in 42 USC 1395dd, which requires the examination and appropriate treatment of emergency medical conditions and forbids the discharge of patients before their conditions are stabilized. The Schindlers believe their daughter was prematurely discharged from the hospital on more than one occasion in an attempt to hasten her death.

Felos accused the Schindlers of trying to subvert the Florida justice system.

"The purpose of this lawsuit is to invalidate the lower court's decision," Felos told the Tampa Tribune Tuesday.

U.S. District Judge Richard Lazzara gave the Schindlers ten days to file an amended version of their lawsuit and offered Felos an additional ten days to respond. He would not, however, block a hearing scheduled for Sept. 11, during which Pinellas-Pasco Florida Circuit Judge George Greer is expected to set a date for Terri Schiavo's feeding tube to be removed.

Attorneys for both sides told reporters after the emergency hearing Tuesday that they do not expect Greer to set that date any earlier than the 20-day period set by the federal court for the Schindlers' amended complaint and Felos' response.



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TOPICS: Culture/Society; Front Page News; News/Current Events
KEYWORDS: carlasaueriyer; carolynjohnson; felos; floridasuncoast; greer; heidilaw; hospice; richardpearse; schiavo; schindler; terri
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To: CindyDawg
hospice is for people that are near death or going to die in several months...

perhaps hospice was not the best choice...

I know hospice here demands that the patient be a "no code" and they do not encourage feeding tubes or other extensions of life, if that life is going to be ending soon anyway...

their mission is to make a dying experience a peaceful one, one without pain or torment or noise or stress of any kind...so while they believe in all that, they may not believe in any rehab. except for comfort....

I have hated this story from day one...

I am so suspicious of this husband, but he has gotten away with it so far....

if only life was fair....

21 posted on 09/03/2003 8:27:59 PM PDT by cherry
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To: cherry
Here, the residents must be re-certified every six months but 10 years? I wouldn't call that terminal. You sure she has been on hospice the entire time?
22 posted on 09/03/2003 8:32:02 PM PDT by CindyDawg
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To: CindyDawg; Ragtime Cowgirl
Yall have a ping list going on this? Put me on it if you do, please. Sometimes I just read and then the thread gets buried.

I'm not sure who all has the ping list .. Ragtime Cowgirl can better answer this

23 posted on 09/03/2003 8:36:44 PM PDT by Mo1 (http://www.favewavs.com/wavs/cartoons/spdemocrats.wav)
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To: kimmie7; floriduh voter
CNN picked up the story and actually did a GREAT job on it!! Maybe this will get more media outlets doing research and following up on it!
24 posted on 09/03/2003 8:46:07 PM PDT by honeygrl (Jacksonville Beach HERE I COME!! Everyone beware! Female looking for fun on the way soon!)
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To: GovernmentShrinker
You may find it hard to believe, but look up the other threads on FR on this woman and you'll start to believe. This whole thing is TRAGIC! The Michael Schiavo slimeball can't be allowed to get away with this!
25 posted on 09/03/2003 8:48:08 PM PDT by honeygrl (Jacksonville Beach HERE I COME!! Everyone beware! Female looking for fun on the way soon!)
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To: CindyDawg
From what I read, the nurses were all very intimidated by Mr Schiavo and feared losing their jobs. I've read one of the nurses entire statement and she said he was physically intimidating.
26 posted on 09/03/2003 8:53:12 PM PDT by honeygrl (Jacksonville Beach HERE I COME!! Everyone beware! Female looking for fun on the way soon!)
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To: CindyDawg; kimmie7
Cindydawg would like on the ping list for Terri
27 posted on 09/03/2003 8:53:57 PM PDT by honeygrl (Jacksonville Beach HERE I COME!! Everyone beware! Female looking for fun on the way soon!)
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To: CindyDawg
http://www.freerepublic.com/focus/f-news/971896/posts

See that thread. I know it's HUGE but it has every bit of info on it you could possibly want to find. They've been doing extensive research into the whole thing.
28 posted on 09/03/2003 8:56:53 PM PDT by honeygrl (Jacksonville Beach HERE I COME!! Everyone beware! Female looking for fun on the way soon!)
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To: CindyDawg
kimmie7 has the ping list.

Here's the thread:http://www.freerepublic.com/focus/news/971896/posts?page=1,50.
29 posted on 09/03/2003 8:58:51 PM PDT by iowamomforfreedom (Why is it illegal to starve an animal but not a human being?)
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To: honeygrl
Yeah, maybe. It's just hard to understand though. Nurses are in high demand and work isn't a problem. Most won't take this kind of crap. CNAs , I could see feeling this way though. I hate it but in Texas anyone can call the hotline annonomously and all complaints are investigated each time. I have looked at it as more of an annoyance than help but maybe it does occasionally have a purpose.
30 posted on 09/03/2003 9:01:10 PM PDT by CindyDawg
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To: honeygrl
My heart breaks for poor Terri.

Please Dear God, let her live a little longer, she has suffered too much for so long. And bless her parents and sister. They need strengh to bear all the bad news, and to continue fighting for Terri.

Honey, please put me on the ping list.
Thanks.

31 posted on 09/03/2003 9:11:15 PM PDT by mickie
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To: GovernmentShrinker
I think it would be along the lines of deathbed confession. Not only that, but we don't know what has happened in their lives. Possibly they are more financially secure and don't need to keep quiet for a job, or they have become a Christian and want to confess and receive absolution....there are a lot of reasons. And not one of them has said they "suddenly remember" - they simply decided to come forward.

I read in a well-cited interview that one of them said it looked like Terri was actually going to be killed and that she just couldn't live with that. Again, that whole 'deathbed confession' mentality.

Whatever the case, they certainly have raised eyebrows and ire.

32 posted on 09/03/2003 9:11:52 PM PDT by kimmie7 (Stand up, stand up for Jesus ye soldiers of the Cross! Pray for Terri Schiavo!)
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To: Mo1
There was a GAL at one time, Richard Pearse, who was suddenly dismissed after filing his report in which he stated that it was his opinion that 1. Michael Schiavo was not a suitable guardian due to his standing to gain financially and 2. The possibility of rehabilitation for Terri was too great to advocate any kind of Exit Protocol.
33 posted on 09/03/2003 9:13:34 PM PDT by kimmie7 (Stand up, stand up for Jesus ye soldiers of the Cross! Pray for Terri Schiavo!)
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To: kimmie7
GAL?
34 posted on 09/03/2003 9:17:55 PM PDT by CindyDawg
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To: Mo1
The problem is, that while M. Schiavo has done things that are morally reprehensible, he hasn't done anything Judge Greer didn't allow him to do. Terri is not in a Permanent Vegetative State, she is chronicly ill and disabled. The Hospice there isn't even licensed to treat chronicly ill...only disabled. Only terminal. This was noted in an Opertion Restore Trust investigation of the Suncoast Hospice by the Health & Human Services Office of the Inspector General. I've got the .pdf file.

Of 264 cases active in hospice over 210 days when Operation Restore Trust did their review, 176 were not eligible for hospice coverage and for 118 they were unable to conclusively determine their terminal illness.

Compare this to only 78 cases in San Diego in which 37 were ineligible and only 19 for which they were unable to determine terminal illness.

Compare this also to Dallas with only 26 active cases in which 20 were not eligible, and only 2 for which "medical records... were insufficient to conclusively determine a life expectancy of 6 months or less, as required by Medicare.

I'm telling you, something is really fishy at Suncoast.

35 posted on 09/03/2003 9:22:38 PM PDT by kimmie7 (Stand up, stand up for Jesus ye soldiers of the Cross! Pray for Terri Schiavo!)
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To: CindyDawg
I just put you on the ping list.

If you would like on the Terri Schiavo ping list, Freepmail or message me.

36 posted on 09/03/2003 9:23:35 PM PDT by kimmie7 (Stand up, stand up for Jesus ye soldiers of the Cross! Pray for Terri Schiavo!)
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To: CindyDawg
She hasn't been in hospice the whole time, but certainly long enough to NOT be classified terminal.
37 posted on 09/03/2003 9:24:32 PM PDT by kimmie7 (Stand up, stand up for Jesus ye soldiers of the Cross! Pray for Terri Schiavo!)
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To: kimmie7
thanks
38 posted on 09/03/2003 9:25:47 PM PDT by CindyDawg
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To: kimmie7
thanks
39 posted on 09/03/2003 9:25:55 PM PDT by CindyDawg
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To: mickie
I've got you on the list. It's getting to be quite large!
40 posted on 09/03/2003 9:26:15 PM PDT by kimmie7 (Stand up, stand up for Jesus ye soldiers of the Cross! Pray for Terri Schiavo!)
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