[chantal7]

That's for sure. The doctors are considering that I may have fibromyalgia or an auto immune disease like lupus but one thing they know..something attacked and damaged my trigeminal nerve in the left side of my face and it's caused me horrible pain for the last 4 years.

Oxycontin has made it possible for me to live a half way normal life most of the time. Some days though the pain is so bad that nothing helps.

[freeeee]

I understand your frustration. Getting an accurate diagnosis is so difficult. It took me 7 hellish years to get properly diagnosed and begin effective treatment.

I wish you well in your fight. NEVER give up. I've never been part of any pain support group because I think support groups can be a bunch of grown ups holding hands and having a pity party, and that's not my style. But if you'd ever like to talk about it, feel free to FRmail me.

[jerseygirl]

"Oxycontin has made it possible for me to live a half way normal life most of the time"...reportedly the pharmaceutical cos. are coming out with a form that drug abusers can't get "high" on....but that's still down the road. Doctors should be in the forefront, demanding adequate pain relief for their patients rather than worrying about the DEA....

[STD]

You probably have RSD and not fibromyalgia

[Grenada]

Ditto. It is so wonderful to have a semi-normal life. I get to take walks with my husband again. And he finds it nice to have his wife back.

People who do not suffer from severe pain have no clue how it destroys one's life.

BTW, my husband is graduating from medical school next month and this generation of doctors are being taught that relief outweighs addiction concerns. They are taught to relieve the pain, have strick med schedules, and to keep a close eye on addiction signs.

Hopefully it will get better in the future.