Well I’m not going to get in a huge, drawn out argument on this subject but I have Neuropathy in both feet, lower legs up to my knees and now in the last 3 months my hands.
The pain gets so bad that I can’t walk, sleep or pick things up. I’ve tried lyrica and gabapentain and they don’t give me any relief. The lyrica just knocks me out for 2 days and I urinate and defecate while out and I refuse to live like that!!! The gabapentain rips my gastrointestinal system up so that’s not a option. Neither does anything to help with the pain.
I take pain Meds to be able to have somewhat of a normal life, walk, do dishes, take out the trash and the “normal” things that most people take for granted.
I still have bad days that I just have to stay in bed because nothing helps.
The pain can get so bad that sometimes I get so nauseous from it that I can’t even eat!
It’s a royal pain in the ass to get Meds. I have to see my Doctor every month to get the Rx filled. That’s $100.00+ just to see Him, then I have to go pay $129.00 for 100 of one pill and the other one I’m supposed to take is $900.00 for 60 pills!!! I can’t afford that one!!! I also have 18 other Meds I’m supposed to take for Heart and Renal problems. I live on $1288.00 @ month Disability and have rent, water, gas, electric, food and would like to have TV and Internet. So I play the “what bill or other item do I get this time?”
When I got my SSDI out of the blue I get Medicaid from the state. That helped a lot, $3.00 Doctor and Rx co-pays. Then suddenly I got a letter from the state saying that I make “too much money” and I lose that coverage. I asked what happened? I get told that the Fed Poverty level is $1009.00 @ month and at $1288.00 I don’t qualify for coverage. “Sorry that’s the way it is, can’t help You.”
Thank God for the Mission Pantry so I can have food from there but they don’t have everything all the time so I still have to go to the store.
I understand that there are some people that have a drug problem and that sucks for them and those of Us that have a real reason and need for pain control.
Jacking the price out of control doesn’t help. Making those of us that need those Meds suffer because of other people’s problems doesn’t help. Lumping us all into one group is pure BULLSHIT!!!
I don’t have the majic answer but I wish I did...
My story and opinion @ Post #26
like crooked lawyers, crooked doctors ruin life not just for their clients/patients but for everybody
” 33,091 involved an opioid” death according to CDC in 2015.
I think we must be careful when looking at government stats and the CDC. The CDC has been implicated in distorting and out right faking vaccine related death statistics. With respect to opioids, I would imagine that in an attempt to justify their narrative, the CDC would consider a stage 4 cancer patient that died on opioids to be an opioid related death, or perhaps a suicide, or any other terminal condition; if opioids were present or prescribed, it’s an opioid related death.
The other thing your story illustrates is that drugs like Lyrica and gabapentin, although often effective for neuropathic pain, have much higher rates of side effects than opioids in general. Lyrica and gabapentin are often associated with hallucinations, dizziness, abdominal pain, excessive sedation etc. Obviously, these side effects can cause harm, injury or even death as well.
The government is also making it harder and more expensive to receive opiates fir chronic pain. In WI, the pain clinic law has made it dangerous (from a regulatory perspective) for primary care physicians to prescribe opioids. This has created an artificial provider scarcity and funneled patients into certified pain clinics. The clinics will typically not accept insurance and charge what the market will bear. You can thank both parties for that.
I must take opioids from time to time due to a muscle disease. I have suffered greatly for many years because if the difficulty in getting medication so I don’t have experience with doctors freely writing scripts for it.. I also fault the medical system and esp Ocare because doctors are put in a situation that they do not have time to really practice medicine. They write Rx because they don’t have time to do much else. Have Dr friends that say the Electronic Medical Record is killing the practice of medicine. I know doctors that will write Rx before they will recommend things like physical therapy which hurts like heck initially but in many cases, gives great relief.
Above all we must not sentence people like you to pain just because other people abuse some drugs. The abusers are easy to tell apart: they say yes whether offered opioids, crack or meth.
Exactly the same as my dad. I hate to see him in pain.