I don’t mind at all.
I have Reflex Sympathetic Dystrophy.
My PCP (personal physician) is an Osteopath.
He is just an OUTSTANDING Doc. I would be lost without him.
He and a few other Docs finally figured it out.
I was glad when my diagnosis was finally found and given a name.
At last, I knew what I was dealing with!
In some people RSD will flare and go away.
In some cases like mine, it NEVER went away.
You can read more about RSD here: https://www.verywell.com/what-is-reflex-sympathetic-dystrophy-syndrome-rsd-190361
Many things can trigger RSD.
In my case it was multiple surgeries on my knee.
Oh my gosh, you poor thing, that sounds terrifying! If you don’t mind my asking, what stage are you in? I’m just wondering if at that point if it would get better or worse, meaning you might have some good days.
It does sound like something that could be mistaken for many other diseases. And I’m sure it was in your pursuit of figuring out the truth. How amazing that an osteopath could figure out something so complicated. I don’t mean to sound like I’m putting him down, but these neurologists go to school for many many years, yet can’t think out of the box. I always said I would prefer to go to a doc Adams than one of these specialists
Maybe I should check out osteopaths. Are they the ones that believe more in natural healing and view the body as a whole?
I have several repetitive stress injury’s from too much typing doing software engineering. Well, I was sent to a rheumatologist who was sure that I had rheumatoid arthritis. That was a scary thought, sounds a bit similar to RSD. Are the changes to your body permanent, like they would be with RA?
My sister was a neurologist, and over the phone without seeing me she was sure I had some neurological damage.
It’s amazing how little they know about anything outside the scope of their field. What a waste of time and money going to them. Even most of the orthopedic surgeons had no clue what I had, Because it is rare. I suppose that’s the same problem you had, something rare that they don’t see every
day.
Like you, I was very happy to have a name. Something I can look up and research. Something that said that I wasn’t crazy or imagining it or making it up!
Chronic pain is horrible to deal with though. Mine had definite emotional and mental aspects. It’s hard to feel hopeful, and hard to imagine being out of pain. I really wish I could do something to help you
I have RSD also, not a fun thing to live with. I got it from a car accident on I-55 with a semi. It took over 4 1/2 years to finally get a correct diagnosis back in 2001.