So, you think the service chiefs at Boston teaching hospitals don't want to "rock the boat" by challenging the diagnoses of their underlings?
Dude, they LIVE, not to rock those boats but to sink'em.
I have repeatedly said that I don't know the diagnosis, and that nobody commenting here does, because we don't have access to the data.
But, in order to "know for certain" that the family is right, you have to believe things about CH (and Tufts) that I know, from long personal experience, aren't true.
>> “ nobody commenting here does … have access to the data.”
A disinterested person doesn’t need access to any data to see that the girl is much worse compared to a year ago; and sadly her condition must have further deteriorated since the wheelchair photo was taken. Apparently the Boston CH can do no wrong in your opinion (#51), but you are hardly a disinterested person by your own admission of long personal experience with them.
You can pontificate all you want about what the chiefs at Boston CH are supposed to do, but the dramatic changes in the patient leaves no doubt their diagnosis and treatment had failed miserably and they are still insisting it is the right and only course. Not a surprise as backing off now means massive liability claims and damage to their reputation.
>> “But, in order to “know for certain” that the family is right, you have to believe things about CH (and Tufts) that I know, from long personal experience, aren’t true.”
To the family watching helplessly as their daughter slowly fade away, it is not a matter of who is right. A life is at stake here and what’s the point arguing about the fallible procedural “things about CH” that you know?