As for going back too work you have several realities to consider. One obviously is the care of your husband while you work. If the kids are old enough they can help watch over him, give him food drink, etc, and have you to contact in case of emergency while at work. I did that for over 5 years and my employer a health care facility wasn't too understanding when I had to up and leave right then and there. LOL. If not then you have the care of the kids as well as him to consider that's why I say look into SSI.
Another factor like what I said above is you will need an employer who is aware of your home situation and flexible to your husbands emergencies and yes you will have them.
You also must also consider your own health both physical and mental ability to handle both caregiver and wage earner roll. It's not easy and it may even bring harm to your own health if you push beyond your limitations.
Apply for all the assistance you can get. Ignore the ones who look down upon it. Look, your husband and yourself to a very real extent as a stay at home mother paid into several programs that was supposed to protect him, you, and your kids, in the event of catastrophic illness.
I am caregiver to my wife of 28 years and have been such for all 28 years. She is a quad. I worked until my body and mind said no more. That was 18 years ago.
One other thing to look into. There are no programs out there for caregivers except for some churches that offer a daycare of sorts to working caregivers. Their ability to help depends on the severity of the person. That is usually a drop off and pick up later arrangement.
Do you have a spare room? If so you could look into giving a room and meals for someone to help you care for him. Hope some of the ideas help you work through this.
Very good advise, cva66snipe.