BEATING HEAD AGAINST WALL! The issue is NOT that she is too young, there is not a lung that would fit that is available. If this were my child I would be fighting as well, even knowing that it was probably futile.
As I understand it, any available adult lung could be prepared to fit her body.
The issue is that the federal regulations say that she does not qualify for an adult lung, so if one does become available, she can’t have it regardless.