Posted on 06/04/2013 6:35:23 PM PDT by SeekAndFind
THANK YOU! I have a terminal lung disease. Not every one that needs a tx is going to get one for one reason or another. The protocol is tough and designed to make the procedure as safe and successful as possible. There are more failures than we would like. A transplant is NOT a fix all end all.
My brother had IPD (I think that’s the acronym). He died last August. At 68 and on a vent there’s not much chance he would have made the donor list but I would have given him half of mine if they would have let me. He left a widow and three kids and five grandchildren. I miss him every day. So that sort of colors my reaction to this story. Every life is precious.
I have Pulmonary Fibrosis, terminal unless transplanted. I talk daily with many people of all ages that will NOT get new lungs for one reason or another. This story is heart breaking, but I and the other lung patients that I am in contact with AGREE with Sebelius.
BEATING HEAD AGAINST WALL! The issue is NOT that she is too young, there is not a lung that would fit that is available. If this were my child I would be fighting as well, even knowing that it was probably futile.
MONEY IS NOT THE ISSUE!
BING0! Everyone is not going to be well no matter what.
The lungs will NOT be tossed. I have many friends that are waiting for the call, hope that it comes before it is too late. Many of these people have small children to raise.
So that is what a “Death Czar” looks like. Also what a “killer” looks like. If Obamacare goes forward she will have as much blood on the her hands as Himmler and his little mustached boss.
I appreciate your post, Coldwater. I, too suffer from the same disease as this little 10 yr old girl, Cystic Fibrosis. I have such mixed emotions on this whole subject for the same reasons you gave. Also, the board that decides the “rules” on trasplants has been in place for a long time. So in effect we already have death panels. If she gets the lungs then perhaps a 12 yr old child who IS eligible dies. Maybe she is too sick to survive the transplant with adult lungs? There are no easy answers. God bless her and her family. I don’t blame them for fighting for their precious girl.
heartless bitch
As I understand it, any available adult lung could be prepared to fit her body.
The issue is that the federal regulations say that she does not qualify for an adult lung, so if one does become available, she can’t have it regardless.
You are free to agree with her, and I am free to disagree with her.
Yes, death happens.
But there’s no point in telling this girl she has no chance of survival because she’s 10 and not twelve.
Everyone in need deserves an equal chance at life based on the latest technology medical science has to offer. To simply turn our heads, and allow an outdated policy to stand, and ignore the fact that advances in medicine now means even younger patients are able to receive adult lungs is morally unacceptable.
I pray that same technology allows for increased availability, perhaps by growing organs outside the body, using parts of parts and etc.
God bless you, and all those on organ waiting lists. Hang in there. Advances in medicine are indeed increasing rapidly, and each new day offers new possibilities.
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