Unfortunately there are many more people in need of organs then donors. There are current rules around who gets in the front of the line. One can argue against the rule as written. But does one want a situation where a Congressman gets to reshuffle the line? If this girl gets to jump in line then someone who does not have the political pull will not get the organ and will die.
I agree with you. If there are rules in place, it should not be up to the discretion of Sebelius or anyone to change the rules at their whim. It is a sad situation, but if we seem to start down a road of condoning the HHS to make decisions as to who lives and who dies... we are just escalating the problem.
This highlights the fact that government officials should not be in the business of making such regulations about life or death.
The lack of suitable organs for transplant will do so.
Also just because someone is at the front of the line for the next available transplant, does not imply that individual will receive said organ.
The organ and recipient much be an acceptable match first.
If this young child was a better match than anyone higher on the list for the available organ; the child should receive it.