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I am reading this thread and I am just amazed. Seems most of you are offended that this child is costing taxpayers so much money. Others think the child should not be out of the house. What do you want institutions, lock these kids away so your eyes won’t be offended. Oh yeah and all those poor kids shouldn’t have to be exposed to such a child. Kids don’t need to be sheltered death is a part of life. Before we sanitized death kids slept in the same house while a loved one was laid out on the couch for viewing.
Yet you call the mother cruel.
What if your doctor told you that you were dying! What would you do? Maybe you would want to go like Tim McGraws sings skydiving. But wait the pilot gets freaked out and refuses to let you go skydiving. Hey he doesn’t want someone to die on his plane. He also doesn’t want to look at someone so skinny and pale, he doesn’t need to be subjected to that. Why ruin his day. It is just too sad for him. Hahha Sad for him - what about you!!!!!!!!!!! You are dying and the pilot doesn’t want to ruin his day. That’s compassion (sarcasm on)
So you just sit in your living room and wait for the grim reaper. Hopefully while your waiting for death your friends aren’t too upset to see you in that condition, because if they are you will be all alone. Believe me lots of people use the excuse “I just can’t see him like that” that translates into “I just don’t want to ruin my day” More compassion (sarcasm) Or maybe you will call another pilot and try your best to go skydiving.
Dammit you are dying, no one is going to stop you from doing what you want, what will make you happy. Your dying YOU do deserve to be happy, not institutionalized.

Well, this child enjoys school, If I were her mother I would move mountains to get her to school.

This mother needs a break, this child enjoys school. Sounds like a win, win to me.

Have any of you ever been faced with caring for a disabled adult. It is harder than you ever imagined. Believe me if you are ever faced with that challenge you will lose 90% of your friends and relatives. Oh they will be around making all kinds of comments about how you are handling it but they won’t darken your door to offer a hand. You will be alone, you will never sleep more than 2 hours at a time, you will spend all your waking hours thinking about your loved one, you will spend all your energy taking care of your loved one and you will go broke. So whoever posted I hope they sue this mother into poverty, your hopes have been answered, this mother will be in debt all the days of her life.

Now for DNR, if your ever seen a real resuscitation you would all run and scream like little girls. I have to question how many times this child has been resuscitation? I’m sure more that the mother can count. Watching your loved one flipped onto their side to get a board under her, or dragged to the floor, then you get to sit and watch as someone literally jumps on her chest over and over again. They shove and yes I mean shove a tube down her throat. (Time is of the essences no time to do it slow, need to move fast so shoving is normal) All the while some big paramedic is still pouncing on her chest. Then someone will grab her arm, tie a tourniquet then jabbed a needle into her arm, if she is lucky the first try will hit a vein if not they will jab again and again. Oh yeah did I mention someone is still pouncing on her chest. Then they will drag her out of her home, away from anything familiar and rush her to a hospital. Where I’m sure they give her some IV fluids, maybe an antibiotic, drag her from her bed to a gurney, to a lab table to take a test. Back onto the gurney, back onto the bed, then they repeat that until every machine in the hospital is used. I’ll bet in a few days after all the results are in they tell the mother. Sorry nothing we can do she can go home now.

You think this is a quality of life? This is cruel and it takes mothers longer to realize that than most. So I applaud this mother. She is doing all she can to make her daughter comfortable and the hell with all those so call know it all’s who think they know what is right for this child. God bless this mother and her child.