That is the truth. Our families are left to cope with this devastating situation, often, on our own. Finances will be strained especially as they grow older. I've been mocked for investigating alternative or anecdotal treatments by those who don't know what it means to live with an autie and especially by the 'traditional' medical establishement that doesn't want to "deal" with an autie. I've arrived at the point where I will pursue these alternative treatments even if they cannot be verified through double-blind studies. As long as a remedy works for my son, that's enough proof for me and for him to continue with said anecdotal remedies.
Oh, exactly! Try what you can and see what works! I tried homeschooling for mine, and that is beating out all the public school services so far. I am sorry we are both in this situation.
We're about to try a combination of HBOT (hyperbaric oxygen therapy) along with Dr. Hammesfahr's approach with vasodilating drugs/natural supplements. He's the doc that Terri Schiavo's parents wanted to use with her, and given what we've learned about the effect of vasodilation on our son from other modalities (probably less effective, however), we're going to give this a try. There's information on the internet about both HBOT and Dr. H, and he does combine the two.