I just sent you a long FReepmail. I know a kid lost in the woods sounds scary...it is....and some cases are harder than others. Right now you're feeling at the end of the world. But catching it early gives you SO MANY more tools. Anyway, children are always blessings and in a way so are the problems we get in our lives. It's just sometimes hard to see it. Hang in there. There will come a time when this will just be NORMAL LIFE for you and your child and you won't be grieving anymore. I wish I'd known when my son was four that when he was 12, we would see most of his "deficits" as strengths, his disability as ARMOR.
There are pains and sins that will never burden my son's soul like they burden most of the rest of us. He is shielded from some temptations and miseries by God's special gift to him...even though when he was four, we just didn't know. Please look at these:
http://www.angelfire.com/ky/touristinfo/holland.html and especially:
http://www.our-kids.org/ That last is the best thing that could happen for a new parent who is dealing with a scary and serious diagnosis of any kind. You will never get flamed there, and no matter what issue comes up, SOMEONE has dealt with it and has support and innovative suggestions.
Thank you for your thoughts, I really do appreciate it. I've been fortunate enough that my son has never been lost in the woods, that I can't even imagine. I saved the links you gave me, so i can look at when I have a little more time. I'm so glad that I found this place everyone has been wonderful. It's true, you do learn much at Freerepublic.