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Kimmie I AGREE God does have special plans for your little one. Please remember, it is NEVER God's will for disease. He is the Healer. This sounds like the Devil attempting to "steal" the life of one of God's special children while tormenting you and your husband. WE WILL Stand together in Unity against this attack!! Btw I KNOW about genetic disorders. My son is a hemopheliac. He is 31 now but his right ankle has been destroyed by bleeds. He is waiting for a complete ankle replacement. It is a fairly new surgery and there is only ONE doctor in all of B.C. does this surgery. He is also HEP C positive. However, he has NO LIVER problems at all. Each and every year his tests are normal. I thank God for that. Now my daughter has two sons, and her first son, my grandson, is also a hemopheliac. The younger one is not. PTL. However, there is no problems with the blood factor now - for the factor 9 Hemo's which my son and grandson are - the product is completely artificial - no human blood protiens therefore no diseases. It wasn't that way when my son Mark was little tho. Thanks to President Clinton, I transfused my son probably thousands of times with infected Arkansas Prison blood. He killed many Hemopheliacs. The factor 8 Hemopheliacs are even worse off - most of them have Hepatitis C AND Aids. The factor 9's - most of them are Hep C positive but only 20% of them have HIV!! So, I KNOW. When our little ones are sick it makes us feel so helpless. But we have a good God, an able God and a God who loves us and our children. You can count on my prayers Kimmie. Stay strong yourself tho and NEVER give up.!!