Posted on 11/21/2001 8:25:30 AM PST by Captain Culpepper
This is the first time in a long while that I am posting an original post. I have periodically responded to posts, but have been a very active "lurker" for a long time. I hope I'm posting this correctly.
I have often read an said prayers in in response to the PRAYER REQUESTS and I can't believe I am doing this but, here goes: My son was born two days ago, his name is Daniel Patrick and he is 7 pounds, 11 ounces, 21 inches long. My wife and have another child and she is five years old.
My son has been in the natal intensive care unit since birth due to very little activity- responses in his arms and legs, and he doesn't show hunger to date. There is no general term for his condition other than "floppy baby" syndrom which is an apt term in my view but hurts to say.
I have been asking the doctors lots of questions but they will not or can not give any prognosis, or idea since from one has told me- this condition in newborns has the greatest range of possibilities. He is having a spinal tap shortly and we are all praying hard for him.
Last year my daughter prayed to God in church for a baby brother and I had her say a prayer the other night with me thanking God for giving him to us (she isn't allowed to see him yet, though-as per the intensive care unit). She did and we are all very thankful. I am a big believer in prayer and prayer groups and ask all who have done for so many here to do so for our little Danny.
I will keep you posted, but I'm off to the hospital now.
Thank you!!!!!!
Two years ago I posted a Thanksgiving prayer request for my pregnant neice who's car had been totaled in an accident. A truck hit her side of the car. It was a blessing to have the prayer support and to read the encouraging words of those here on FR. Mommy and baby did fine. His name is Joshua and he will be two years old in a few months!
And...baby Daniel is already a blessing! What a joy to read a complete thread full of encouragement!
Lori
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FANTABULOUS !! !! !!
Pegita
He is making, in my words, "slow but steady" progress. He is eating more and more and seems to have better tone by the day. I believe the prayers are working and ask that everyone keep them coming. We also had him baptized yesterday.
Daniel Patrick is having an MRI and EEG today and hopefully we will know more after these tests, as we are still on hold with a diagnosis, as "hypotonia" (low tone) as a syndrome is as close as we are gettting from the docs so far. I am starting to get frustrated, but am trying to ask the right questions and make sure they are getting answered and that we are making the right desisions for him. We ask that you pray for us- his Mom and Dad too as going back and forth to the hospital is tough on us both. (My wife has been home from the hospital since last Friday.)
Our five year old daughter got to see her little baby brother last Friday night which was very nice, and the back and forth without Mommy and Daddy for her has been a strain for her too. Hopefully he will be home sooner rather than later, and again we pray for that too.
I will keep you updated, and again thank you and God Bless.
Danny has been home from the hospital since December 4th and is doing great! He was discharged without a diagnosis as all of the tests that were done were negative. His "slow and steady" progress became remarkable and by the time of discharge, the treating neonatologist-in response to my question- said his movements were "normal" for any two week old!
His first visit to the regular pediatrician showed that he put on 10 ounces in the first week he was home- up to 8 pounds! He thinks he is doing great. He has since been seen in the office of the neurologist- last week- who saw him in the hospital. His observation was that he was still "floppy" after his head stayed back when he lifted him up.. the office visit was about 5 minutes my wife said- and he asked her 4 times how old he was (one month to the day). I wasn't crazy about this particular doc the first time I met him and this last visit only served to lower my opinion further.
Next up was a physical therapy visit yesterday who I believe was realistic with her views in the hospital and yesterday's visit was also similar. She said he is doing remarkably better than when he was in the hospital. However, his feet turn inward somewhat which could be a result of his low tone beginning and a little weak in the neck-- but this could be normal as well for a 4-5 week old. She recommended PT once a week to keep an eye and look for progress. To be prudent,my wife and I both agree and are very optimistic. The next doctor visit is in a couple of weeks with the pediatrician and neonatologist.
The bottom line is that Danny is eating great, showing good progress in all areas, is an incredibly alert baby and my wife and I believe in our hearts that he will be fine. We are trusting our instincts, and while we are listening to the "experts" like the aforementioned neurologist, we are believing what our own eyes, ears and hearts are telling us.
Big sister loves her little brother and we are all very grateful as Christmas approaches.
Thanks again to all for all the prayers and we believe that they were- and still are being- heard and is the Number 1 reason Danny looks to be a happy, healthy one month old!!
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