Need Resources On Careproviding For A Back Up Plan

Oceanperch

[oceanperch]

I could not find the thread for us Careproviders.

Quick and to the point I need help on resourses for my adult, medically fragile, Conservative sharp minded, great son.

I use to be a great advocate when he was young but life slow down.

If in the event of my leaving this world he has no family or friends willing to take on a huge responsibility.

He needs a full time medical facility. He has his own vendors and private care coverage. But to get someone out to our home on shifts does not work. He cannot be left more than a hour while awake or three when he is asleep due to life supporting tubes.

If in a facility he must be fit with a cacoon like bed that is equal to the price of the new security/armour Caddilac.

He is fully cognitive and uses a communication device accessing it by a single head switch.

He is a practicing Catholic that has lived in the carnel world if by thought and observation only. He understands it is a responsibility to examine ones life daily.

He is not affiliated with any City,County,State or Federal Progam.

He would like to live in a well guarded facility, with his contribution in the Activities Dept.

United Cerabral Palsy rates low for referral.

They do a great job in helping slightly disabled.

He cannot tolerate heat does well in humid cold areas.

Would love to live in an old big city. Expects to go out for social functions 3 x a week.

Did I mention he would not survive in a group home. He cannot control limb movements and is 6ft and 175+.

If anyone has a thought/link for us to check on please notify me freepmail.

I have the only place that will take him as an emerg. now but if they have orders to suction twice a day and he needs 4 to 5 or a inner canula change he says it hasn't happened in the past when I was in the hosp.

I can use this place as a 48hr care but it takes a whole crew to move him,supplies and epuipment so I tend to stay well.

[oceanperch]

Any Prayer on this matter would be the best help.

[oceanperch]

Vanity Bump
For Pics Scroll to the bottom of my bio to Links of Freeper Family Pics.

[firewalk]

I don't have any info, but here's a bump

prayers

[LadyDoc]

you need a social worker to help you navigate the public and private resources in your area.

There are home health services in most areas. Often they can arrange a homemaker or nurses aid to watch for a few hours each day. If you are a full time caregiver, you might want to arrange "respite care" in a local nursing home, i.e. arrange a few days only in a local nursing home so you can take off and stay sane.

Conservatives take care of their families, but in our society most people have to work. Sometimes you can find an older lady or a teen out of high school who will help, either for money or out of love.

ask your doctor to refer you to a social service in the area, or look in the phone book. I refer all the time: People don't know what is available, but our local home health nurses often can make suggestions after making a home visit. Home health can be public, or private. Some churches sponsor visiting nurses.

If your son has a "terminal" disease and does not want extraordinary treatment, home hospice workers are also helping out. (liver or pulmonary or heart diseases). I had one gentleman with liver disease who had no insurance, so we had hospice help. He was in last week, much better, and no longer under hospice: with their care, he improved, and is no longer dying, so not eligible.

Finally, every disease has an organization: brain damage, paraplegia, cancer, pulmonary, cancer. They often have resources too.

[LadyDoc]

Now, if you are looking for a nursing home, you might try finding one run by the Little sisters of the Poor or the Carmelites.

Both groups are dedicated to their people...and have a prayerful atmosphere. But they are cheerful too. Elders there are seen as having dignity, not as useless eaters. Of course, some government regulations won't allow nursing home to take younger people...

[EagleMamaMT]

God bless you and your son, Oceanperch. I'm praying for both of you. I hope you find your answers.

[spectre]

Morning, op. I wish I had an answer for you. I'm bumping this thread hoping someone else can help you out.

Regards, sw

[oceanperch]

Have done all of the above. He is to extreme for any of these agencies to help.

Social services are more interested in taking over his finances and has suggested a group home his Dr. has said he would never agree to this nor would I.

Does not qualify for hospice and the local and next town over Home health could not staff anyone for his needs.

The only thing I can get is update training for his medical care.

He is on a revive always plan.

He is the first generation to live this long but there are others that will be coming up behind him.
Trust me being independent fnancially looks like candy to the govt. but I have used services in the past.

The severly disabled are not served well. We have other friends with severe medically fragile adult kids.

They are having the same problem.

One family put there son in a group home with a no revive and he is in a hospice level. LOL God bless him he has been termeninal status for six yrs. He is not combative either.

Think of the flailing of a newborn and put that into the strength of a grown man. He is stuck in the patterns of a newborn along with the just that level of cordination.

There has to be a facility somewhere.

The popular thing nowadays is the group homes and that is great for those who have lessor degrees of disabilities. For KV it would be a death camp.

[oceanperch]

That sounds like a resourse. Only one nursing home in our state will agree to take him. But at least we have that even though the care is not the best.