[ghostcat]

This is fantastic information!!!! My 6 1/2 year old daughter has had a pacemaker since she was 2 weeks old due to a extreeeeeemly rare condition known as neo natal lupos syndrome. It causes a heart block to develop that makes it impossible for the two sides of the heart to communicate, the only way to deal with this is mechanical pacing. We have been hoping and praying for this type of development for years and it now looks like now that there is progress finally being made.
This same syndrome cost us the life of our older daughter when she was only 27 hours old 16 1/2 years ago, but fortunatley with advancements in med tech and in pacing tech our youngest daughter has been able to live a fairly normal and active life. The big downside with pacing has been the constant monitering and the frequent surgeries to replace the unit, although the number of them is slowing down as she grows larger and older.

[NYer]

This same syndrome cost us the life of our older daughter when she was only 27 hours old 16 1/2 years ago,

My sincerest sympathy. My daugther is 16. Will keep you and your family in my prayers. Hopefully, a cure will come soon. I just checked the AP Wire again, thinking they might have posted a link to a web site, but there was nothing. If I find one, I'll pass it along to you.