I deal with these issues all the time (but not in babies).
“Hope” is one thing. Denial of biology is not the same as hope.
Hoping something wasn’t true, hoping that things people are telling you are false, wishing that things were not as they are, these are all common, normal human reactions to incurable or irreversible diseases.
It’s not common for things to go this far.
See post 10 please.
L
My 43 year olf brother had Cancer and he had little time. I asked him if he was afraid to die. He told me something I will never forget. First he said, Thank you for asking. Nobody ever wants to talk about it. He continued, “I am not afraid to die, I’m afraid of the pain.” He was in hospice before he died and we made sure he was not in pain. It was the least I could do.