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To: billyboy15
Is there treatment for this condition post birth?

Other than closure, I really don't know the answer to that.

When our son was born, the Drs. were quite clear in apprising us that, in addition to existing neurological damage, closure carried with it significant risk of slicing neuro pathways that were invisible even with the microscope they were using during the surgery. Our son was 7 hours old at the time of the surgery.

Subsequent to the surgery he suffered cardiac arrest. Was read his last rites. Severe clinically diagnosed mental retardation resulted, but he survived.

A year and a half later he went into grand mal seize for five hours. Again, read his last rites. Again, he survived.

He is now 45 and in a group home, though we had him with us for 41 years.

12 posted on 06/20/2019 2:51:00 PM PDT by pilipo (We are not free.)
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To: pilipo

I’m so sorry. Your faith has been sorely tested.


16 posted on 06/20/2019 3:10:46 PM PDT by billyboy15
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To: pilipo

It sounds like medical science are learning away around it. Hope so.

All kids can be challenging. Your baby is more challenging than most. Prayers.


19 posted on 06/20/2019 4:05:44 PM PDT by lizma2
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