I think any means possible should be done if there’s a chance of saving the life of a child or an adult...
There are only few and extreme cases where insurance doesn’t pay, plus there are institutions such as St. Judes...
The parents and lil Charlie need a miracle. What if they take him off life support and by some possible miraculous way the baby survives without it? That would change the whole equation. it would be a step of faith for certain for whatever resulted afterwards.