From what I understand, they are proposing using a completely untested "treatment" on him. Giving chemicals without any real knowledge of how they will affect a human body could very well cause him pain.
The treatment has been used in a similar case.
‘The dad of a kid with a similar disability as young Charlie Gard made an emotional and moving plea on behalf of the Gard family.
Peter Smith’s son, Maxwell, has benefitted from the nucleoside therapy which Charlie’s parents desperately want for their son.
As Smith spoke with ITV’s This Morning, he was moved to tears, and spoke about his son’s improvement after the experimental treatment.’
http://ussanews.com/News1/2017/07/10/father-of-disabled-child-makes-emotional-plea-for-charlie-gard/
There’s barrier in the brain which they question greatly if this medication can penetrate......he is already convulsing sometimes for hours on end which creates more than a delima for the Dr’s to treat him.
IMO continuing on is abusive....but I do understand the parents holding on. They have done so regardless of his being ‘terminal’ from the beginning at 8 weeks old.... and actively sought the magic that might change the outcome.
I saw this with a family member who could not let her husband go.....he was unrecognizable when she finally accepted there was no hope. A dreadful thing to watch.
There’s barrier in the brain which they question greatly if this medication can penetrate......he is already convulsing sometimes for hours on end which creates more than a delima for the Dr’s to treat him.
IMO continuing on is abusive....but I do understand the parents holding on. They have done so regardless of his being ‘terminal’ from the beginning at 8 weeks old.... and actively sought the magic that might change the outcome.
I saw this with a family member who could not let her husband go.....he was unrecognizable when she finally accepted there was no hope. A dreadful thing to watch.