From what you say, it probably is hopeless. All doctors in U.S. would probably agree, so they should be required to find a doctor first.
They’ve already been through countless Dr.s......and through every court. Even the Human Rights understand the condition of this child and wouldn’t hear further. The child has had all the signs of dying for sometime....
I stand with the physicians who understand the progression of this disease and of which, in this case, was advanced pretty much early on.
It’s so sad to see the parents holding on to false hope when the condition of their child has been so grave. Unnderstandable as that is sometimes the medical profession works to ‘protect the child’ from further suffering. It has gone on too long with all these court sessions etc.