25 or so years ago I was diagnosed with a pituitary tumor. My eye doctor found it but I had no symptom. The young endocrinologist said it was a micro and hidden in the folds of the pituitary tumor
She moved on (was doing a fellowship at the time)
Her replacement told me to come back when I got symptoms
Not knowing what the symptoms were we’ve doctored for so much tested for more and ruled out many in the last year.
Then my new endocrinologist started asking questions and I’ve started remembering thru the fog and naps the detail and got busy googling
We’re running they same test a 25 years ago starting this week (all.records were destroyed after 7 years)
The symptoms no one bothered to explain are identical to most on here. Mine is inherited. Need prayers that we can find it this time. Treatment is much improved. Surgery thru nose or radiation. I just want a diagnosis— 90% of cure is diagnosis. And remember that 50% of all.doctors graduate in the bottom half of their class
[[25 or so years ago I was diagnosed with a pituitary tumor.]]
Me too- Had it surgically removed- I hope this doesn’t discourage you, (Your surgery just might help you tremendously- I hope and pray it does) but in my case, I had a rare condition called acromegaly (one in something like 6 million get it)- and the thing with acromegaly, it can cause many of the exhaustion symptoms and weakness, and foggy thinking etc- so I was thinking “Finally, an answer to my exhaustion” and was kind of excited thinking that the surgery would restore my energy- It didn’t-
Mine was affecting the growth hormone- and like oyu say, when that happens, it can cause the very same symptoms as Chronic fatigue- but again- the surgery didn’t do much- if anything to alleviate my symptoms.
The surgery is much improved, and much safer these days- this big worry is if the tumor is on the optic nerve- as that can cause vision problems- but today, they are using a camera up inside to guide the surgeon- (I went all the way out to boston to get surgery from a renown pituitary surgeon just so it would be done with that newish device, and wouldn’t you know it, my bad luck, the machine not working- and so they had to do it the old fashioned way)
The surgery wasn’t bad, and the recovery was fine- just be aware that you will get some tissue and likely quite a bit of mucous discharge which can be unnerving if you don’t know it could happen- The tissue deal is because they take a bit of your skin.fat to reseal the nasal cavity with after the surgery- sometimes a bit can come out and be a bit alarming- but it’s normal I guess- My surgery was in 2005, and I’ve ben fine- no issues-
One issue you need to be aware of, and I don’t mean to scare you, but if the tumor is pressing on optic nerve, there is a bit of a chance you could lose your eyesight- but like I said, the new surgery techniques have practically eliminated this problem- The % is very low now for vision loss— I wasn’t too concerned going in- and it shouldn’t be what stops you from getting the surgery because if left alone, the tumor could cause blindness too- and infact has a higher % of doing so depending on it’s location
Sorry for the not so encouraging news- but I think these are important thigns to weigh when one has a pituitary tumor- and like I said, your surgery could very well give you back your strength and energy as well-