It is very upsetting. I was a very active person- not anymore. I am just so tired all the time.
This is largely the reason most doctors believe there is a psychological component to this as opposed to a physiological one.
Being tired all the time is a bit too subjective to determine cause and effect.
I don't question your condition at all, as it's how you see it and sense it..but a doctor can't do that unless they use simple empathy which some doctors do..the generalist kind.
IMO, what you have to do is to use the age old process of elimination and keep doing it, logging every attempt and keeping records. One would hope that eventually you will stumble upon the key to unlocking the mystery.
One thing we do know, and that is the fact that this condition is much more common in women then men.
Drug companies are trying to find goofy combos of medicines to relive the symptoms and coincidently the more effective compounds are related to SSRI's or anti-depressants.. Hope this helps...but everyone is essentially a unique copy of the human template and we may certainly have unique conditions as a result.
I know exactly what you mean Faith- I was always on the go- working VERY hard 12-14 hours a day - grueling work- and always had energy to spare at the end of the day-
No more- that all cam to a screeching halt 18 years ago- I have spent those years wasting tons of money, time, and just becoming more frustrated when no diagnosis-
We tell docs “I’m exhausted” and they say “Well I get tired too, but I am working” and it’s like they don’t believe you- I wish they could spend 2-3 weeks in my body just to find out that when we say we’re exhausted, we do NOT mean we’re simply tired!
It’s like having a flu 24/7- NO let up- I feel like telling htem “Try having a flu for 18 freakin years with NO relief- EVER! You haven’t got a clue hwat being tired is all about!”
Very Very frustrating condition- and I don’t even know if it is chronic fatigue, fibromyalgia, or some other condition- Can’t get any answers- they just say Chron ic fatigue because they don’t know what is causing it-