Because it is a Hail Mary issue. It may or may not work. But why deny a dying child a chance. Put yourselves in his parents position.
I lost a child to Cytomagalic Inclusion Disease virus because there where nor cures for it. He lived 33 days. I’ve walked the mile in these parents shoes. And parents who love their children will go to any length to save them. Who know the drug manufacture may be throwing a chance of a trial on 1 child away.
There are now Federals laws allowing for a compassionate use in cases like this. I know as a parent I’d risk it. The worse thing in the world is to sit helplessly by and watch your child die before your eyes. Except to have one Murdered.
What about all the other people who could benefit from this drug if they had it right now?
I see where your pain comes from.
So sorry you lost your baby.