My wife has significant experience working as a nurse taking care of people with Downs Syndrome, and has been on the board of a non-profit which takes care of those afflicted. There is basically an entire government supported industry that has grown up around the care for people with Downs Syndrome. It is not that surprising that some who may have to find a new way to make a living... might view this development in a negative light.
Our assumption here is that in general the relatives who are concerned about “preserving the culture” are either getting a whole lot of assistance including substantial government funds given to them to take of their relative or they are not the ones actually carrying for their relative.
We have known entire families who have basically been supported by the money that they get from the government to take care of their relative with Downs Syndrome. Some of these people might also be inclined to make up these same type of lame excuses to deny their relative proper treatment when and if it becomes available.
We personally think that it would be inhumane to even consider withholding this type of treatment should it become effective and available.
Profoundly so. I have a 20 year old step son with autism. We would do anything, anything for a cure. These irresponsible, self centered, selfish people fill me with sorrow and anger.
I guess is makes them feel "special" to care for a disabled kid to the point of Munchhausen by proxy. Either that or they stand to loose benefits if the kid recovers and can enjoy a normal life.