Going through this as we speak with my mother-in-law. Hospice care only provides daily visits, so we have to pay $500/day for private nurses to be there 24X7.
And yes, it is a gruesome process for sure.
There is a local hospice house in this area where patients are cared for 24/7.
Statement of Purpose
At the John R. Williamson Hospice House, we provide specialized care to eligible hospice patients who require acute pain management and symptom control; physical, emotional, or spiritual stabilization; or frequent clinical assessment and observation. We also offer short-term placement for hospice patients who have no caregiver, whose caregiver has a need for temporary respite, or where circumstances in the home environment necessitate an extended, but limited, period of caregiver relief.
The John R. Williamson Hospice House accepts patients from anywhere in the nation.
http://lifetouchhospice.org/Hospice_House.html
I remember the frustration of trying to find help for my Dad when my Mother was ill. She didn’t want to refuse all but palliative care, she was not ready to give up, so hospice was not an option. She wanted to stay at home. There is really nothing like hospice for the person who wants to live.