That would be my best advice. We non-medical people can only make guesses, some of them wild, some valid.
St Jude’s http://www.stjude.org/stjude/v/index.jsp?vgnextoid=f87d4c2a71fca210VgnVCM1000001e0215acRCRD
Or Lebonheur Children’s Hospital here in Memphis. http://www.lebonheur.org/portal/site/lebonheur/
I do believe that St Jude takes patients by referral only and with strict criteria of what treatment has already taken place.