God bless your family ~
I have a four year old with Optic Nerve Hypoplasia....the fancy name they’ve given under-developed optic nerves.
He also has a slew of other vision issues ( nystagmus, esotropia, afferant pupuliary defect, and the list goes on ).
He was diagnosed with a cataract at 6 months old, surgery to remove right before 7 months old and we did the contact lens thing for awhile and at 3 years, 1 week old, he had the lens implant surgery.
His left eye is a bit smaller than the right... nerve on right is just slightly ONH but no one notices his eyes unless they talk to him and he has to turn his head to the right and look out the left side of his eyes as that is where his nystagmus ( latin for dancing eyes ) is the least wiggly and that is how he has to look at you.
We’ll be going in 2 days to have an eye movement recording done again to get a better reading to prepare for the eye muscle surgery.
Sorry I got long winded but wanted to say God bless you and yours.
Oh my, Your poor little guy. Thank you so much for sharing. No matter what your problem, there is always someone with worse. Give your little one a hug for me. I hope all goes well with your next procedures.