The parents discharged their child, against the advice of doctors at london medical. There is nothing more to it. The child has no brain function, he cannot survive. Torturing him further by performing a tracheotomy may extend his life, but does not extend his quality of life. Parents need to be able to make these decision themselves...I just think they are making the wrong decision...
You appear to be a doctor in England?
I am not in doubt of the diagnosis, I DO object to the government making life and death decisions for this family. His parents accept he will die, his sister did indeed die of this same thing. They simply want to provide the loving care for him at home while the inevitable happens. Government health care insurance should NOT dictate to families how to live and die. It is insurance, help with medical bills. A trach is not that big a deal to allow them to let their baby come home to die in their loving arms.
I am sorry for your loss, but this is about getting out of this family’s face and letting them live out Baby Joseph’s days on this earth as they choose. You are absolutely right, there is nothing more to do, so get him home. The alternative is to kill him. I don’t believe in murder....just because he has a bad prognosis, doesn’t mean we kill him.
Sorry, I misread your post. You have had no personal loss. My mistake.