[ErnBatavia]

Any chance someone at Loma Linda's Children hospital could give some help?

They're up in Sacramento, and well plugged into a large network of neurologists, etc.....as well, they are hooking up with a research team from St. Louis. This will be for study purposes only, however, as this "EEME" condition is considered hopeless. It's very complicated, and fortunately for others, extremely rare.

[Ernest_at_the_Beach]

Thanks for the reply,...:

I looked at that abstract --condition sounds very complicated and rather rare as you say.

Medical knowledge is such a valuable commodity.

I went thru that with my wife ...her cancer generated schizophrenia behavior...which is also rare...finally handled with medication.