I also have no lower itnestines, and only part of my upper/small intestines, and have had to have stomach rerouted, resected (had to have a Ruyan(sp?) ‘Y’ done to bypass diseased sectio nthat couldn’t be removed and was closed up and non functional because of hte Crohn’s
I’m suppsoed to be o nthe shots- I did try them for awhile, but it didn’t seem ot be helpiung, so I quite a few years back, but I’ve developped peripheral neuropathy over hte years that has left me weak and causes muscle ‘burning pain’ (I liken it to when you overexcersize, and your muscles begin to burn, and you have to stop to let that burning sensation stop before you can go on again- this burning pain happens to me with very little muscle stimulation now- causing excersize intolorance and making life kinda miserable)- looking into the issue, there’s a condition caused by B-12 dificiency that causes neuropathy- from what I understand, it’s irreversible, and the only hting you can do is take B-12 to keep it from getting any worse.
I’ve ordered some B-12 methylcolbalmine which is suppsoed to be a more absorbable form for people with isntestinal problems- we’ll see how that works-
Good luck with that Cott. It sounds pretty tough and I wish there was something to help with the neuropathy. That has to be very discouraging for you.