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URGENT PRAYERS NEEDED - UPDATE - STEPHANIE - DIED AT 1:37 PM - I' M HEARTBROKEN; update @ #99]
Concerned | 07/16/2009 | Me

Posted on 07/16/2009 3:01:05 AM PDT by Concerned

URGENT PRAYERS NEEDED - STEPHANIE'S 3RD TRACH OCCLUDES - HOSPITAL ARM-TWISTING for DNR

Earlier thread and updates:
http://www.freerepublic.com/focus/news/2283778/posts
http://www.freerepublic.com/focus/news/2283778/posts?page=181#181
http://www.freerepublic.com/focus/news/2283778/posts?page=203#203
http://www.freerepublic.com/focus/news/2283778/posts?page=239#239

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(1) THE 3RD TRACH (2ND CUSTOM) ALSO OCCLUDING
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Prior to the ENT Doctor inserting the 3rd trach (2nd custom), she told us it was our last option, other than re-intubating Stephanie.

For some reason, the trach keeps moving around inside Stephanie's trachea and occluding. It is EXTREMELY positional. Supposedly, the shape of Stephanie's trachea is sort of zig zag.

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(2) SHE WAS STABLE & IMPROVING WHILE INTUBATED
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The ONLY reason why we trached her was that the Pulmonologist Doctor (that I do NOT like), and the Respiratory Therapist, kept STRONGLY PUSHING it, saying it would really help her and be FAR BETTER than Bi-Pap or intubation.

STEPHANIE WAS **STABLE** WHILE INTUBATED!!!!!!!!!
SHE WAS **IMPROVING** WHILE INTUBATED!!!!!!!

AND SHE DIDN'T HAVE INFECTIONS!!!!!!!

Of course, although no one could know for sure how well it would work, we RELIED on their training, expertise and CONFIDENCE that it would be "THE" ANSWER.

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(3) DOCTOR / HOSPITAL PUSHING DNR
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I am absolutely SICKENED that the Doctor and hospital are PUSHING us to give them orders to DNR.

First, they PUSH to get RID of the intubation---which was WORKING---to go to a trach, then when the trach doesn't help, but instead makes it FAR, FAR, FAR WORSE, they want us to order DNR!!!

They especially don't want to have to give her CPR compression, claiming that they would likely break her ribs if they were to have to do it to her.

Clearly, I don't want Stephanie to hurt or be hurt, but I am VERY CONCERNED a DNR would give them an excuse to not give her CARE if/when she occludes. Since she has no assets or income, she is over 18 (and we could not get insurance on her), and she is on Medicaid, they have been ESPECIALLY eager to get her out the door instead of getting her well first.

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(4) DOCTOR PUSHED FEEDING WITH BI-PAP
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When I saw the Bi-Pap Stephanie was on, I was NOT real comfortable with it. I wanted her intubated and to get an "NG" tube so that she could NOT have to worry about breathing or eating.

But the Doctor and hospital RESISTED INTUBATING!!!

And they kept saying that you couldn't get an NG tube with Bi-Pap because it would leak air. But they EVENTUALLY DID JUST THAT ANYWAY!!!

She IMPROVED SO MUCH with the NG tube, they sent her to a regular floor!!!

Once we got to the regular floor (with Bi-Pap), the Doctor then INSISTED that we try to FEED HER BY MOUTH even though they had put in an NG tube---and it WAS WORKING!!!!

And then, she ASPIRATED when fed because she NEEDED the Bi-Pap to breathe yet could not swallow fast enough to get it out of the way before having to have the Bi-Pap!!!

She had been MAKING PROGRESS until then, but then she CRASHED when she tried to eat WHILE STILL DEPENDENT ON BI-PAP (WHICH BLOWS FOOD/LIQUID DOWN YOUR AIRWAY)!!!

At that time, SHE HAD NO INFECTIONS!!!

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(5) I'VE CRIED SO MANY TEARS I CAN'T STAND IT!!! BP 176/108
============================================

Every time the Doctor wants to have a "conference," it is REALLY BAD NEWS!!! And it gets WORSE EACH TIME!!!

Each time, my blood pressure SKY ROCKETS! I took it today after the meeting and it was 176/108!!! (And I take BP meds, although my Doctor just changed it because of a reported defect with the med).

I have cried and cried and cried---till it HURTS!!!

And it REALLY HURTS to think that we may lose Stephanie when she just went in due to a STUPID SEIZURE THAT SHOULD HAVE BEEN CONTROLLED WITH MEDS!!!!!!!!!

And then she ASPIRATED and got ASPIRATION PNEUMONIA---NOT viral or bacterial pneumonia---ASPIRATION PNEUMONIA ---as a result of a STUPID SEIZURE THAT SHOULD HAVE BEEN CONTROLLED BY MEDS!!!!!!!

I am HEARTBROKEN!!!

============================================


TOPICS: Announcements; Culture/Society; News/Current Events
KEYWORDS: condolences; freeperprayers; life; prayers; stephanie; urgent
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1 posted on 07/16/2009 3:01:06 AM PDT by Concerned
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To: Concerned

My prayers are with you!


2 posted on 07/16/2009 3:05:13 AM PDT by crazy aunt in the attic
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To: Concerned; Faith

Prayers up.


3 posted on 07/16/2009 3:07:47 AM PDT by fieldmarshaldj (~"This is what happens when you find a stranger in the Alps !"~~)
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To: Concerned

Prayers up.


4 posted on 07/16/2009 3:08:03 AM PDT by WorkerbeeCitizen (The only time I want a Republican reaching across the aisle is to smack a liberal.)
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To: Concerned; Mrs. Don-o

I am sorry to hear of this. People who have not had to battle with the medical system have no idea. Prayers sent.

I assume the staff of this hospital includes something like a “patient’s advocate”?


5 posted on 07/16/2009 3:10:50 AM PDT by don-o (My son, Ben - Marine PFC- 1/16/09 - Parris Island - LC -6/4/09 - 29 Palms - Camp Pendleton 6/18)
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To: Concerned

I really understand your pain. Sadly, this is the attitude of Some Doctors.


6 posted on 07/16/2009 3:10:54 AM PDT by Marty62
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To: Concerned

Prayers for Stephanie, and for you.


7 posted on 07/16/2009 3:12:18 AM PDT by Judith Anne (Drill here! Drill NOW! Defund the EPA!)
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To: All
PLEASE PRAY that either the trach will quit occluding or we can re-intubate and get her over her pneumonia and infections, and that she will be healthy enough to put in a G-tube (for feeding, o replace the "NG" nasal feeding tube).

PLEASE PRAY that HE will give Stephanie's Doctors, Nurses, Therapists and us the exact right method to help her.

PLEASE PRAY that GOD will completely heal Stephanie.

Thanks, FReepers!!! I REALLY appreciate it!!!

Concerned

8 posted on 07/16/2009 3:18:11 AM PDT by Concerned (My Motto: It's NEVER wrong to do what's RIGHT!!!)
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To: Concerned

Prayers to you and yours.


9 posted on 07/16/2009 3:19:13 AM PDT by TalBlack
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To: Concerned

Prayers sent.

Stay strong and find peace through faith.


10 posted on 07/16/2009 3:21:12 AM PDT by Ghost of Philip Marlowe (It's soft tyranny, folks. It's smiley-face fascism.)
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To: Concerned

I’m praying for you and for Stephanie.

God only gives us as much as we can handle, even when it seems we can’t do it.

As HIM to give you the strength to keep yourself healthy so you can help your daughter.


11 posted on 07/16/2009 3:21:23 AM PDT by Brytani (DC Freeper Convention and National Tea Party - FreepMail Me for rooms and convention info!)
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To: Concerned

I’m off to St. Benedict Abbey for Mass. I’ll be praying for Stephanie and you.


12 posted on 07/16/2009 3:32:26 AM PDT by hershey
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To: Concerned

We are praying. Please stay healthy and trust in God. He is with you and He is with Stephanie, please believe.


13 posted on 07/16/2009 3:33:39 AM PDT by momincombatboots (The last experience of the sinner is the horrible enslavement of the freedom he desired. -C.S. Lewis)
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To: Concerned

May God heal Stephanie.


14 posted on 07/16/2009 3:43:32 AM PDT by OldCorps
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To: Concerned

Prayers up to you and yours. Have faith in the healing power of God’s love.


15 posted on 07/16/2009 3:46:12 AM PDT by RU88 (Bow to no man)
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To: Concerned

When we get to the end of ourselves, we get to the beginning of God.

Hang in there. Be firm with the doctors. I’ll be praying for you and Stephanie.


16 posted on 07/16/2009 3:46:41 AM PDT by al_c (Jan 20, 2013: The end of One Big A** Mistake, America)
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To: Concerned

Lord, hear our prayer.


17 posted on 07/16/2009 3:58:48 AM PDT by GRRRRR (He'll NEVER be my President! (FUBO!))
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To: Concerned

May God grant you and your family strength, discernment and perseverance during this very difficult time, and comfort to Stephanie.


18 posted on 07/16/2009 4:01:27 AM PDT by NautiNurse (Obama: A day without TOTUS is like a day without sunshine)
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To: Concerned

I am so sorry you all are being put through this. I am praying.


19 posted on 07/16/2009 4:04:51 AM PDT by Marie Antoinette (Proud Clinton-hater since 1998.)
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To: Concerned

My prayers will be with you all..


20 posted on 07/16/2009 4:08:23 AM PDT by SE Mom (Proud mom of an Iraq war combat vet)
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