Posted on 07/01/2009 6:45:07 PM PDT by Concerned
URGENT PRAYERS NEEDED - DAUGHTER ON RESPIRATOR, NOW HAS MRSA.
My daughter, Stephanie, is on a respirator and nasal feeding tube in the ICU at our local hospital. She was admitted to the hospital on 06/07/2009, after having a seizure that lasted over an hour. She had several shorter ones back-to-back after admission. We were told today that she now has MRSA.
I have written about her before. She is a severely mentally and physically disabled 24 year old, who does not walk, talk, or feed herself. She wears diapers and has a very rare type of dwarfism, so she is only 36 inches tall. She will be 25 years old on 07/27/2009, assuming she lives through this ordeal.
When she was about 9 months old, she had to be trached and on a respirator, with a feeding tube, for a little over 3 years, because her rib cage was significantly deformed and not large enough to allow her lungs to fully expand.
The VERY progressive Doctors we had thought that if she could be trached and ventilated on a respirator, the positive pressure from the respirator pushing her lungs out to hit her rib cage would stimulate her rib cage to grow over three years---and it DID, significantly!
We had an ICU in our home, with round-the-clock nursing. Eventually, she no longer needed either the Respirator or feeding tube.
Because of her respirator-enlarged rib cage, from about age five until probably age 20 or so, she was basically like most kids as far as getting sick was concerned. No major medical problems during that time.
Then suddenly, she started having seizures, especially after we got her out of the tub and she was still a little wet. For some reason, her ability to deal with temperature regulation went haywire and she began having febrile (i.e. sudden, major temperature-drop) seizures. She also started having them with strobe light effects, e.g. when a fan was beneath lights and the fan "cut through" the path of light.
Since we had taken Stephanie on many trips during her lifetime, my husband and I decided to take our younger daughter on a cruise to Alaska via Vancouver, leaving Stephanie in the hands of the agency which regularly helps us care for her at home.
We had just gotten off the ship and were back in Canada when we got the call about Stephanie going to the hospital. We got back asap.
We just okayed the Doctor to have her trached again and to have a feeding tube put in again. The trach may be temporary, but she aspirates when she gets anything by mouth. And now, she has to also fight off MRSA.
PLEASE PRAY FOR HER HEALING AND RECOVERY and to guide the Doctors' hands and for us to make the right decisions.
Thanks!!!
Love and prayers to you all!
Prayers for Stephanie and family. God bless.
“...leaving Stephanie in the hands of the agency
which regularly helps us care for her...”
-
Can you provide more info on this?
Your ‘about’ page does not say much...
I have a niece that is 30 years old
with the mind of a 3 year old.
It is heartbreaking.
My prayers for you and for your daughter.
Prayers for both of you.
Dad had MRSA last fall with his GJ tube. There are some new medicines out there...Make sure she gets them....He was better in just a couple of days. That being said it was the prayers that pulled him through....Prayers going up for all of you and Stephanie.
Prayers sent for healing for her and comfort for you all. Peace.
Missy
Praying for your precious girl & your family. May the God of all comfort comfort you in your tribulation and grant your peace.
Prayers made for her and you.
4 little ones in Maryland will be praying for her tonight!
Sorry to hear this.
Prayers being sent.
Godspeed and may all of you find peace through faith.
I join in prayer.
Matt 18:20
Prayers on the way.
Prayers up.
Praying for your precious girl & your family. May the God of all comfort comfort you in your tribulation and grant your peace.
May God please help your family tonight. My prayers are with you and yours.
I believe when FReepers pray for you, prayers are answered.
Keeping your beloved daughter in my prayers.
/FF
Oh no! Prayers sent for your dear daughter!
On the intercession of St. Padre Pio, may Our Lord Jesus grant healing to your daughter, and comfort you and give you peace.
Praying for Stephanie.
Concerned,
Prayers for Stephanie and all of your family. May God give you all strength and comfort as you face yet another health crisis together. You are a special, special mom. God bless you.
TXBlair
Wow. God be with you all.
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