Posted on 03/09/2009 6:43:36 AM PDT by Scythian
I watched the video. I do not recall seeing any minorities in there with infection. Is this a white persons disease? That in itself could explain the total denial by the medical community.
There are African Americans with this, I know of at least two, but we don’t give much person info away on the forums, none in fact.
The article gives so many different types of bugs and fungus, that by the end it starts to sound absurd. I really would like some definitive information on this as I hear about from time to time.
medicine is a scientific discipline. In order to have a "disease" you need to have a deviation or interruption of the normal function or structure of the body that has characteristic symptoms and signs.
In other words measurable data to show the "malfunction" needs to be present. Also the malfunction has to be related to the findings of the causative agent.
Chronic fatigue may in fact exist. But the causative agents that can be replicated in blinded studies don't exist. Anecdotal evidence is one thing but the science has to back it up.
An example is if you have a patient that drinks water and beer, whiskey and water, tequila and water, scotch and water and all patients get drunk... it must be the water causing it. Unless you do the studies to have patients drink water alone and with other compounds you'll never understand that the alcohol in the fluids causes the drunkenness.
A lot of feel good, politically correct stuff is creeping into medicine, so don't worry. Chronic Fatigue will get to be a disease that qualifies for SSI disability just like ADHD, alcoholism, heroin addiction and chronic back pain.
I do take those, buy not the Nystatin, I’m going the total natural route, it was interesting that Trisha recommended keeping the body alkaline, that also has helped me tremendously. Good stuff, she seems to be right on.
Thanks for the post. You are brave indeed.
I have a sister who suffers so. She is one of the most brilliant minds you could ever meet, for a year wshe was hardly able to remember if she had a conversation with you and what was said. She has finally found doctors that are willing to tell her she isn’t delusional. Not sure where the ‘delusional’ diagnosis started out, but the doctor(s) who first resorted to it deserve to burn. The pain that ‘go away’ diagnoses has caused is unimaginable. Even a close family friend dermatologist gave that diagnosis as he blew my sister off in her quest for help.
Real work has been proceeding on answering the questions about how, why and where the disease comes from. Every sufferer I have heard tell of had a very complicated medical history. Going to take a lot of work to unravel the physiology and come up with treatments and cures. The mix of symptoms probably means there will be no ‘one solution’ for all sufferers. The answers WILL come though.
Bless you!
Just another thought to consider, pearl millet is known to be the only alkaline cereal grain. Some people insist that it is helpful for dietary reasons. It is somewhat difficult to find in the U.S. Most of the product labelled “millet” in grocery and specialty stores is actually proso milllet - completely unrelated to pearl millet Disclosure - I conduct research with the grain but am not a producer. Freepmail me if you want to discuss this further.
Just as another thought - pearl millet that is available is not GMO. I had never heard of the link between Agrobacterium tumefaciens and Morgellens before until I read this article. The GMO link was the first thought that crossed by mind. Agrobacterium genes are widely used in transformation events. Only after a google search I see that others have suggested the same connection.
Unfortunately, until a traditional disease entity is officially established and can be tested for in the clinical setting, patient complaints and symptoms suggestive of CFS are mostly disparaged and ignored. This is so even when closer attention to the nature of those complaints and more diagnostic effort could result in relief for the patient — and from well-recognized diseases at that.
Currently, diagnostic skills are taught and applied in a formulaic fashion. Just as the kitchen help in a McDonald’s cannot depart from the menu items, too many doctors are a loss when patients do not present symptoms that fit accustomed diagnostic patterns. Atypical cases and protean disorders are often missed.
Today, CFS is just an easy way to put a troublesome category of patients into a category of permanent illness that calls for little further effort at diagnosis and treatment. Objectively though, celiac disease and atypical shingles are a good fit for many cases of CFS. I know of no medical authority though that even suggests that they be considered and excluded when CFS is suspected.
Yes, AgroBacterium has been proven to be able to make the cross kingdom jump between plant and animal, something they originally said was impossible, but AgroBacterium is but one thing they are using in GMO, I have done a lot of research in this are and could lay out a very good case for a particular “item” that lies at the cause.
Like Trisha said in the article, and I have been saying for two years, something “got in it” and made our skin seem like soil or a rotting log to insects, and it has nothing to do with a weak immune system.
Read this article
http://abcnews.go.com/primetime/story?id=2283503&page=1
Billy Koch, a former Major League baseball player who was one of a handful of pitchers who could throw a ball at more than 100 mph was at the top of his game, then two years later was out of baseball. Why? Morgellons, its way more than a skin disease. And his entire family came down with it all at once. Not uncommon for family’s all the across the country I’m sorry to say.
My problem is hypothyroidism and adrenal disease.
Medical professionals are woefully ignorant on both of these ailments. Sometimes I think I know more than they do, which is scary, and due to their ignorance it would behoove anyone who suffers from these diseases to really educate themselves and not just take the doctor’s word for it.
Not only should people educate themselves, but they also need to educate friends and family so they can speak up for the patient when the patient is unable to.
Adrenal crisis can be reversed by a simple shot. If someone is in adrenal crisis, their organs start to shut down. If the person is unconscious, they need an advocate who can demand proper treatment. A medic-alert bracelet won’t always cut it.
No.
Just freezing to death, mind numbing fatigue, weight gain and pain everywhere. Everything is pretty much fixed except for the fatigue part & the weight gain.
I’m getting better but I’ll probably never be 100%.
I got more useful advice from forums than I ever did from a doctor. If it weren’t for the forums, I probably wouldn’t be feeling better now.
I would be interested in your theories, and your case for the role of diet in development or exacerbation of this disease.
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